This year marked our 10th Dinner in the Dark, held on November 1 at Foxwoods Resort Casino — a milestone we were thrilled to celebrate with new and familiar faces. […]
Hope in Focus, a nonprofit organization dedicated to advancing treatments and support for Leber congenital amaurosis (LCA), will host its annual fundraiser, Dinner in the Dark, on Saturday, [...]
The development of diverse treatment approaches for Leber congenital amaurosis (LCA) is necessary because no single modality will work for everyone affected. While development of gene [...]
Gene therapy is unequivocally the most advanced approach for treating retinal diseases like Leber congenital amaurosis (LCA). Of course, there’s LUXTURNA® which is FDA-approved and has restored [...]
The second panel session of the 2025 LCA Family Conference, “Participating in a Clinical Trial,” examined clinical trial development and participation from the researcher and patient [...]
The 2025 LCA Family Conference in Minneapolis, MN, offered four informational panel sessions, where the 135 attendees learned about living with Leber congenital amaurosis (LCA) and other [...]
We’re in the process of relaunching the Hope in Focus website, and we need the help of a professional writer/editor to support this project. Some sections of the web copy […]
Ledyard, CT — [6/30/2024] — Hope in Focus, a nonprofit organization dedicated to supporting individuals and families affected by Leber congenital amaurosis (LCA) and other rare inherited retinal [...]
Throughout her 29 years, Michelle Ward Caton has embraced life with unwavering curiosity and gusto. Determined to test her abilities and not be limited by vision loss from Leber congenital […]
The development of gene therapies for inherited retinal diseases (IRDs) took off when young adults and children showed significant vision improvements in an early clinical trial for what would [...]
