Webinar: Know Your Gene
You or someone you know has LCA, RP or some other rare retinal disease. But do you know what your genetic mutation is? Where to go for testing and how […]
Free
Events
Loading view.
Global Genes and EveryLife Foundation for Rare Diseases RARE on the Road Rare Disease Leadership Tours
RARE on the Road brings critical education and insights to rare disease patients, advocates and caregivers, while collaborating in an interactive, engaging environment. Topics include the Patients’ Role and Drug […]
VISIONS 2018 National Conference
VISIONS, the national conference of the Foundation Fighting Blindness, is the only event of its kind—created solely for individuals and families who are affected by retinal diseases. Find access to […]
A Pentatonix Christmas Tour
Mohegan Sun 1 Mohegan Sun Blvd, Uncasville, CT, United StatesA Pentatonix Christmas Tour at Mohegan Sun Arena Skybox!
$80
A Rare Opportunity
Lake of Isles 1 Clubhouse Dr, North Stonington, CT, United StatesPlease join us for an evening to raise awareness of rare inherited retinal disease. Join us to learn about vision lost and vision gained and issues facing those with […]
New Kids On The Block: The Mixtape Tour
Mohegan Sun 1 Mohegan Sun Blvd, Uncasville, CT, United StatesNKOTB Mixtape Tour at Mohegan Sun Arena Skybox Wednesday, July 3, 2019 7:00 p.m. Buy Your Tickets! New Kids On The Block launched their biggest tour in years in May, […]
LCA Family Conference 2019
Warwick Rittenhouse Square 220 S 17TH ST, PHILADELPHIA, PA, United StatesJoin Sofia Sees Hope for its 2nd LCA Family Conference in Philadelphia. In multiple sessions, hear the latest in research, treatments, education, and advocacy in the Leber congenital amaurosis and […]
NORD Connecticut Rare Action Network Rare Disease Day 2020
Connecticut State Legislative Office Building 300 Capitol Avenue, Hartford, CT, United StatesPlease join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event on Rare Disease Day to discuss the challenges rare disease patients face and learn […]
CANCELED: A Rare Opportunity: New York Times Bestselling Author Kody Keplinger
La Grua Center 32 Water Street, Stonington, CT, United StatesWE HOPE TO RESCHEDULE IN THE FALL. Sofia Sees Hope presents "A Rare Opportunity: Kody Keplinger," New York Times bestselling author who lives with Leber congenital amaurosis. Kody Keplinger was […]
Visions 2020
Hyatt Regency Minneapolis 1300 Nicollet Mall, Minneapolis, MN, United StatesJoin Sofia Sees Hope at VISIONS 2020, the national conference of the Foundation Fighting Blindness, a one-of-a-kind event in which individuals who are visually impaired, and their families, have the opportunity […]