RARE on the Road brings critical education and insights to rare disease patients, advocates and caregivers, while collaborating in an interactive, engaging environment. Topics include the Patients’ Role and Drug […]
VISIONS, the national conference of the Foundation Fighting Blindness, is the only event of its kind—created solely for individuals and families who are affected by retinal diseases. Find access to […]
A Pentatonix Christmas Tour at Mohegan Sun Arena Skybox!
Please join us for an evening to raise awareness of rare inherited retinal disease. Join us to learn about vision lost and vision gained and issues facing those with […]
NKOTB Mixtape Tour at Mohegan Sun Arena Skybox Wednesday, July 3, 2019 7:00 p.m. Buy Your Tickets! New Kids On The Block launched their biggest tour in years in May, […]
Join Sofia Sees Hope for its 2nd LCA Family Conference in Philadelphia. In multiple sessions, hear the latest in research, treatments, education, and advocacy in the Leber congenital amaurosis and […]
Please join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event on Rare Disease Day to discuss the challenges rare disease patients face and learn […]
WE HOPE TO RESCHEDULE IN THE FALL. Sofia Sees Hope presents "A Rare Opportunity: Kody Keplinger," New York Times bestselling author who lives with Leber congenital amaurosis. Kody Keplinger was […]
Join Sofia Sees Hope at VISIONS 2020, the national conference of the Foundation Fighting Blindness, a one-of-a-kind event in which individuals who are visually impaired, and their families, have the opportunity […]
A unique blend of history and mixology, with two-time James Beard Award-winner and Master Mixologist Dale DeGroff, (aka King of Cocktails). Invite a few friends, fire up the Zoom, and […]
