Hope in Focus Podcast | Episode 6 – Brett Devloo: Stay on the Board

Joining Ben Shaberman is Brett Devloo—blind skateboarder, creative force, and living proof that identity doesn’t disappear when vision does. After suddenly losing his sight to Leber’s Hereditary Optic Neuropathy (LHON), Brett was forced to reimagine who he was and what his future could be. 

In this episode, Brett reflects on losing his vision and how skateboarding became a place of familiarity and grounding, helping him navigate a world that had suddenly changed—alongside the friends and community who helped shape who he is today.

Brett also talks about his upcoming documentary premiering in Canada and the mission behind his clothing brand.

At the heart of it all is Brett’s message:
“Stay on the board. End on the board. No matter what board you’re on.”

Episode 1 – The LCA Journey: Two Parents’ Perspectives/Get to know the Hope in Focus founding

In this inaugural episode, host Ben Shaberman talks with Laura Manfre and David Brint—founders of two leading organizations in the LCA space. Laura is the co-founder of Hope in Focus and a current board member of the Foundation Fighting Blindness. David founded the Foundation for Retinal Research and is the former board chair of the Foundation Fighting Blindness.

They share their personal journeys as parents of children with LCA, from receiving the diagnosis to helping build the LCA community into what it is today. Hear how their experiences led to the creation of Hope in Focus and the Foundation for Retinal Research, and how those efforts continue to support and inspire families.

For those newly facing an LCA diagnosis, Laura and David offer perspective, encouragement, and practical ways to find connection, hope, and community.