Supporting the LCA community
We see a cure for blindness
Join us for the LCA Family Conference!
June 20-21, 2025 • Embassy Suites, Minneapolis, MN
This conference will provide information about advances in research, deepen your understanding of various stakeholders’ roles in developing treatments, and provide an opportunity for those living with rare inherited retinal disease and those involved in developing treatments to learn from each other.
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
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Thinking about joining us this June? Don't wait! Early bird pricing ends April 1. ![]()
We’re excited to bring together everyone passionate about advancing treatments for blindness. Our conference will provide insights into the latest research advancements, highlight key roles in treatment development, and offer opportunities to connect with others impacted by LCA and other IRDs.![]()
If you need financial
The March newsletter is out now! Check out our digital version of our quarterly newsletter, which focuses on the LCA Family Conference, Q&A with Angelica Bretón Morán who has LCA6, updates on MeiraGTx’s AIPL1 gene therapy, and upcoming events. If you would like to receive a hard copy in the mail, be sure to sign up. We mail internationally. ![]()
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Link to our recent newsletters: loom.ly/u4JEIis![]()
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