Supporting the LCA community
We see a cure for blindness
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
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Prepare to be inspired by Anthony Ferraro, the featured speaker at our major fundraising event, Dinner in the Dark, on November 2, 2024, at Foxwoods Resort Casino in Mashantucket, Connecticut. We look forward to seeing you there! Asfvision ![]()
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Image Description: Anthony Ferraro wearing a tie-dye tee-shirt holding up a peace sign and his guide cane.![]()
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#dinnerinthedark #ditd24 #foxwoods #HopeInFocus #HIF #LCA #lebercongenitalamaurosis #guestspeaker #asfvision #anthonyferraro
Happy World Sight Day! ![]()
Let’s raise awareness about blindness and visual impairments together.![]()
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Image Description: Blue background with white text stating, "World Sight Day, October 10". Below, two people holding the world. White animated graphics behind. Underneath is the Hope in Focus logo.![]()
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#WSD2024 #WorldSightDay #LCA #LeberCongenitalAmaurosis #HopeInFocus #HIF #BlindCommunity #LowVision #VisuallyImpaired #Inclusion