Supporting the LCA community

We see a cure for blindness

Sofia Sees Hope Vision and Mission

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank you to these organizations

for their ongoing commitment to Hope in Focus.

 
Atsena
Dominion
Janssen
Simply Majestic
Spark
 

Let’s Get Social!

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2 days ago

Hope in Focus
The new Eye on the Cure podcast has Dr. Kia Washington, a professor in the Division of Plastic and Reconstructive Surgery at the University of Colorado, sharing her work on whole eye transplantation with host Ben Shaberman. She opens up about the importance of diversity in her field, being the first Black woman to hold the title of full professor.Link for this week's podcast: loom.ly/p75uZooImage Description: Blue background with Foundation Fighting Blindness logo top left and Eye on the Cure logo top right. White text in the center stating "Listen to the Latest podcast Episode Out Now." with head shot of host Ben Shaberman and guest Dr. Kia Washington.#LCA #LeberCongenitalAmaurosis #HopeInFocus #LCA10 #FFB #EyeOnTheCurePodcast #FoundationFightingBlindess ... See MoreSee Less
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5 days ago

Hope in Focus
Prepare to be inspired by Anthony Ferraro, the featured speaker at our major fundraising event, Dinner in the Dark, on November 2, 2024, at Foxwoods Resort Casino in Mashantucket, Connecticut. We look forward to seeing you there! Asfvision Image Description: Anthony Ferraro wearing a tie-dye tee-shirt holding up a peace sign and his guide cane.#dinnerinthedark #ditd24 #foxwoods #HopeInFocus #HIF #LCA #lebercongenitalamaurosis #GuestSpeaker #asfvision #anthonyferraro ... See MoreSee Less
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