Supporting the LCA Community

We see a cure for blindness

Baby with Leber Congenital Amaurosis
Icon - Living with LCA

Living with LCA

Since 2014, we’ve supported the LCA community with education, resources, and connections that strengthen and unite individuals and families across the IRD community.

Icon - Get Involved

Get Involved

Our donors and corporate partners drive our mission, helping us impact lives of those with LCA and rare IRDs. Learn about events, sponsorships, and partnerships.

Icon - Finding a Cure

Finding a Cure

By supporting the ecosystem that develops treatments for blinding diseases, we can advance therapies to approval. Join us in making these breakthroughs possible.

Episode 6

Hope in Focus Podcast | Episode 6 – Brett Devloo: Stay on the Board

Joining Ben Shaberman is Brett Devloo—blind skateboarder, creative force, and living proof that identity doesn’t disappear when vision does. After suddenly losing his sight to Leber’s Hereditary Optic Neuropathy (LHON), Brett was forced to reimagine who he was and what his future could be.  In this episode, Brett reflects on losing his vision and how […]

Blair, Luca, and John Corso

My Friend Luca: Balancing Hope and Reality

Three-year-old Luca Corso’s preschool teacher announced that everyone should quickly sit on their floor shapes for carpet time. As the other children eagerly scattered to their assigned spots, Luca wandered. He wasn’t being disruptive—he just wasn’t sure what to do. Even with glasses and a cane, he couldn’t locate a flat shape on the floor. […]

Chef’s Menu at Cedars

Chef’s Menu at Cedars

February 27, 2026 – Join us for dinner, bring a friend, and plan to meet new ones as you enjoy an intimate evening with 20 supporters of Hope in Focus.

27+

genetic mutations can cause LCA

$2.5M+

raised to support research and community programs

32+

countries in our global reach