Supporting the LCA community
We see a cure for blindness
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
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Caitlin and Greg Smith’s family grew with the arrival of baby James in June 2023, but they soon noticed he wasn’t visually tracking like his siblings had. ![]()
After visiting specialists, they learned James had Leber congenital amaurosis (LCA9), a rare inherited retinal condition. While the diagnosis was overwhelming, the Smiths dove into learning everything they could, found support through Hope in Focus, and connected with other families facing similar challenges. Today, James is a joyful, adventurous little boy, showered with love and care by his family, who are determined to give him every opportunity to thrive.![]()
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To read more about James and his family: loom.ly/oyehMX0![]()
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Image Description: Baby James on the floor, playing with his toys and smiling at the camera.![]()
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#LCA9 #HIF #LCA #LeberCongenitalAmaurosis #HopeInFocus #BlindCommunity #LowVision #VisuallyImpaired #Inclusion
If you missed it, the new Eye on the Cure podcast is out featuring Sharon King, co-founder and president of Taylor’s Tale, and host, Ben Shaberman. Sharon discusses her family's journey when they found out her daughter had Batten Disease. Taylor's Tale is raising awareness and funding research for the life-limiting disease and tireless advocates for the rare disease community. ![]()
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Link for this podcast: loom.ly/mOe-d0k![]()
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Image description: Dark blue background with Foundation Fighting Blindness logo top left and Eye on the cure logo top right. White text in center stating "Listen to the Latest Podcast Out Now." with headshot of host Ben Shaberman and guest Sharon King.![]()
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#LCA #LeberCongenitalAmaurosis #HopeInFocus #BlindCommunity #LowVision #VisuallyImpaired #Inclusion #HIF