Supporting the LCA community
We see a cure for blindness
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
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Calling all Foundation Fighting Blindness community members in and around Connecticut! 📢 ![]()
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Don't miss our Vision Seminar at Foxwood Casino on November 2, in partnership with Hope in Focus! Learn about blinding diseases, gain insights from a panel of experts, and discover the power of patient advocacy in advancing research and treatments. ![]()
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Following the Vision Seminar, stay for Dinner in the Dark - an annual fundraising event and unique culinary experience hosted by Hope in Focus!![]()
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To learn more and to RSVP for both events, visit our website at: bit.ly/3C0c4gx![]()
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Image Description: Dark blue and teal gradient boarder with a white background. The Foundation Fighting Blindness Vision Seminar logo centered at the top with an orange line below it followed by text to the left that reads “Saturday, November 2, 2024, 1:00 p.m. to 3:30 p.m. ET. Foxwoods Casino, Bravo Meeting Room. 350 Trolley Line Blvd. Mashantucket, CT 06338.” To the right is text that reads “In partnership with” followed by the Hope in Focus logo.
Don’t forget that advanced registration is required for the Northeast Vision Seminar, which will be co-hosted by The Foundation Fighting Blindness and Hope in Focus, and will focus on inherited retinal diseases.![]()
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To register for the Northeast Vision Seminar, RSVP to Amanda Bement at ABement@FightingBlindness.org. ![]()
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Image Description: Dark blue gradient border with white background. The Foundation Fighting Blindness Vision Seminar logo centered at the top, below it followed by text to the left stating, “Saturday, November 2, 2024, 1:00 p.m. to 3:30 p.m. ET. Foxwoods Casino, Bravo Meeting Room. 350 Trolley Line Blvd. Mashantucket, CT 06338.” Bottom right text states “In partnership with” followed by the Hope in Focus logo. ![]()
#BlindCommunity #LowVision #VisuallyImpaired #Inclusion #LCA #LeberCongenitalAmaurosis #HopeInFocus