Supporting the LCA community
We see a cure for blindness
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
[fts_twitter twitter_name=SofiaSeesHope tweets_count=4 cover_photo=no stats_bar=no show_retweets=no show_replies=no]
The Northeast Vision Seminar, co-hosted with @FoundationFightingBlindness was hugely successful on Saturday, November 2. We truly appreciate our speakers and guests' participation and support.![]()
Here are some images from the event itself.![]()
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#ffb #FoundationFightingBlindness #HIF #HopeInFocus #LCA #lebercongenitalamaurosis #blindcommunity #lowvision #visuallyimpaired #inclusion #irds
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Image 1: Black text asking, "Why stripes for rare disease?" with a colorful zebra print background.![]()
Image 2: Black text box asking, "Why stripes for rare disease?", and white text box below stating "Medical students are told to look first for the most common diagnosis. That's why they were taught, "When you hear hoof beats, think of horses, not zebras." Well, since we're raising funds to treat rare eye disease, we want you to think of zebras, the international symbol of rare disease. And if you're up for it, show off your stripes at Dinner in the Dark." The background is a colorful zebra print background.![]()
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#RareDisease #IRDs # #DinnerInTheDark #DITD24 #Foxwoods #LCA #LeberCongenitalAmaurosis #HopeInFocus #BlindCommunity #LowVision #VisuallyImpaired #Inclusion #Awareness #Zebras