Supporting the LCA community
We see a cure for blindness
Join us for the LCA Family Conference!
June 20-21, 2025 • Embassy Suites, Minneapolis, MN
This conference will provide information about advances in research, deepen your understanding of various stakeholders’ roles in developing treatments, and provide an opportunity for those living with rare inherited retinal disease and those involved in developing treatments to learn from each other. More information coming soon!
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
[fts_twitter twitter_name=SofiaSeesHope tweets_count=4 cover_photo=no stats_bar=no show_retweets=no show_replies=no]
What is the difference between gene editing and gene therapy?![]()
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Gene editing involves altering, removing, or replacing a mutated gene at the DNA level. In contrast, gene therapy addresses the mutation’s impact by adding a functional copy of the gene, while the mutated gene remains in the genome. ![]()
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Image Description: A white background with a blue geometric-shaped molecule. A blue border around the blue text, as stated above. Below is the Hope in Focus logo.![]()
#LCA #LeberCongenitalAmaurosis #HopeInFocus #BlindCommunity #LowVision #VisuallyImpaired #Inclusion
What are you doing for Rare Disease Day 2025?![]()
Join us at Cedars Steak and Oysters for a 4-course dinner with wine pairings! 100% of your purchase goes to Hope in Focus’s mission through the generosity of Foxwoods Resort Casino. ![]()
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Interested? Take a look at the menu: loom.ly/Mw1-rXY ![]()
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Image Description: White background with black text top of image stating, "Chef's menu at Cedars benefitting Hope in Focus." with Hope in Focus logo below it. Underneath text is Cedars logo with a blue text box and white text stating "Foxwoods Resort Casino, Cedars Steaks and Oysters, Friday, February 28, 2025 7:00 p.m."![]()
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#LCA #LeberCongenitalAmaurosis #HopeInFocus #BlindCommunity #LowVision #VisuallyImpaired #Inclusion #Fundraiser #Foxwoods #FoxwoodsResortCasino #Cedars