Supporting the LCA Community
We see a cure for blindness
Living with LCA
Since 2014, we’ve supported the LCA community with education, resources, and connections that strengthen and unite individuals and families across the IRD community.
Get Involved
Our donors and corporate partners drive our mission, helping us impact lives of those with LCA and rare IRDs. Learn about events, sponsorships, and partnerships.
Finding a Cure
By supporting the ecosystem that develops treatments for blinding diseases, we can advance therapies to approval. Join us in making these breakthroughs possible.
Learn Through Stories & Videos
What’s New
Episode 11 – Finding Her Voice: A Conversation with Sarah Hardwig
In this episode, we sit down with emerging country singer-songwriter Sarah Hardwig, who was diagnosed at just five months old with LCA10 CEP290. Sarah’s vision loss has never stopped her from pursuing her passion for music, showcasing her natural talent, or sharing her voice with others. Sarah opens up about growing up with vision loss, […]
Report from 2026 ARVO: Several Emerging LCA Gene Therapies are Restoring Vision
In reporting on emerging therapies for LCA and other retinal diseases, my mantra has always been “just the facts.” If you’re old enough, you might remember those iconic words from the stoic detective Joe Friday on the TV show “Dragnet.” Bottom line, I prefer not to embellish my reporting with hyperbole or emotion. (But I […]
Dinner in the Dark
October 24, 2026 • Foxwoods Resort and Casino, Mashantucket, CT Our primary fundraiser for the year, this event is a true culinary adventure! You will enjoy a gourmet dinner while wearing a blindfold, and we keep the menu secret. Come learn about the exciting ways we are working to transform the lives of those without […]
Did You Know?
genetic mutations can cause LCA
raised to support research and community programs
countries in our global reach
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