FORMERLY KNOWN AS SOFIA SEES HOPE

SEEING A CURE FOR BLINDNESS

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What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank You to These Organizations

for their Ongoing Commitment to Hope in Focus.

 
Editas
ProQR
Spark
Simply Majestic
Dominion
agtc
MeiraGTx
Janssen
 

Let’s Get Social!

6 days ago

Hope in Focus
This #GivingTuesday (Nov. 30) give hope to those living with inherited retinal disease.Remember our story about Jordynn and her mom Joy and grandma Gwen — a 5-year-old genetically diagnosed with a form of Leber congenital amaurosis called LCA2 (RPE65)? They attended our 2019 LCA Family Conference and made important connections with other families, researchers, and industry. We are thrilled to give hope to LCA families like Jordynn's — something we are able to do because of the generosity of our donors. This year, we have a new way you can support our work! We’ve partnered with Harness to make it possible for you to round up the change on your bank and credit card purchases to the nearest dollar, and donate that change to Hope in Focus. It’s a small amount that gets rounded up, and it makes a big difference to us. We hope you will give it a try - our team has already and it’s easy!Learn more and get started here: hopeinfocus.harnessapp.com/wv2/donate?method=one-time,monthly,roundup&selected-method=roundup ... See MoreSee Less
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