Join us June 23-25, 2023
LCA FAMILY CONFERENCE
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
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“Any quantity of vision is everything for us.”
Second Global RDH12 Scientific Conference Brings Clinical Trials Closer to Reality - Hope in Focus
hopeinfocus.org
Global retinal disease experts identify and prioritize clinical trial elements to develop treatment for Leber congenital amaurosis 13 (RDH12)
Every child with a disability has a right to a timely diagnosis, targeted interventions, effective services and accessible educational programming.
Until he was 5, my son lived in ‘a world where no one knew he was blind’
www.wbur.org
My son Henry is a child on the blindness spectrum who makes others feel seen, writes Rachel Bennett. Still, I constantly wonder what could be different now, if we’d found the right resources sooner.