Supporting the LCA community
We see a cure for blindness
Join Us To Party for Sight!
May – September 7
This summer, we’re inviting you to help shine a light on LCA and other rare inherited retinal diseases (IRDs). Join our community-wide effort to raise awareness and support for Hope in Focus and our mission to advance treatments.
Host a small get-together, share facts about rare diseases, or tell your own story. Big or small, every effort helps spread awareness and brings more attention to our shared journey. Together, we can make a lasting impact that extends far beyond the summer.
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)(3) patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
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Are you aware that July is Disability Pride Month? This month recognizes the accomplishments and challenges faced by the disability community. So why July? It is the anniversary of the Americans with Disabilities Act (ADA)!![]()
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Image Description: Grey background with white letters to the right side stating "July is Disability Pride Month". On the opposite corner, on the bottom of image is colors: green, blue, white, yellow, and red.![]()
#LCA #LeberCongenitalAmaurosis #HopeInFocus #DisabilityPrideMonth #Awareness
Our friends at the Foundation Fighting Blindness are hosting a special webinar focused on CRB1-associated retinal disease and it’s happening tomorrow, Saturday, July 12 at 11:00 a.m. ET. ![]()
This is a great opportunity to learn more and hear directly from experts in the field.![]()
Register here to join: loom.ly/_LC1nEw![]()
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#LCA #CRB1 #LeberCongenitalAmaurosis #HopeInFocus #BlindCommunity #LowVision #VisuallyImpaired #Inclusion