Supporting the LCA community
We see a cure for blindness
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
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Are you interested in learning more about others who are affected by LCA? Our Stories page offers a window into their lives, sharing personal journeys and raising awareness about this disease. ![]()
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Thank you for your support!![]()
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#LCA #lebercongenitalamaurosis #HopeInFocus #HIF #FamilyStories #awareness #IRD
In the latest episode of the Eye on the Cure podcast, host Ben Shaberman chats with Dr. Francois Paquet-Durand from the University of Tübingen and co-founder of Mireca. They explore the journey behind a promising, Foundation-funded drug for treating certain forms of retinitis pigmentosa.![]()
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Tune in by clicking the link below.![]()
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#FoundationFightingBlindness #IRD #LCA #LeberCongenitalAmaurosis #HopeInFocus #EyeOnTheCure![]()
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Image Description: A blue background with the Eye on the Cure logo at the top, with the headshot of Dr. Francois Paquet-Durand to the left and text to the right stating "Episode 69: Dr. Francois Paquet-Durand" Below the text is another stating, "Listen to the Latest Podcast Episode Out now." The Foundation Fighting Blindness logo placed bottom left.