FORMERLY KNOWN AS SOFIA SEES HOPE
SEEING A CURE FOR BLINDNESS
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank You to These Organizations
for their Ongoing Commitment to Hope in Focus.
Let’s Get Social!
Our survey is live until tomorrow (Friday!) Share with your networks, so we can gain important insights into what further educational information and resources are needed for the LCA community.![]()
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Please check the box "check if you have no code." Find the survey here: bit.ly/3x1PsYiAre you affected by Leber Congenital Amaurosis?![]()
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Don't miss out on the chance to participate in this survey for the #LCA community and share your insights! The survey can be found here: bit.ly/3x1PsYi![]()
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Image description: Text: "We want to hear from YOU." Graphic of clipboard. Background is a swirl of light and dark blue. Hope in Focus logo top right. ![]()
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#RetinalDisease #RareDisease
After their Illuminate trial analyses, ProQR shares updates and priorities.
ProQR Announces Updates and Priorities After Illuminate Trial Analyses - Hope in Focus
hopeinfocus.org
ProQR will continue its Leber congenital amaurosis CEP290 pediatric study and explore development of selected genetic eye disease programs.