Supporting the LCA community

We see a cure for blindness

Sofia Sees Hope Vision and Mission

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank you to these organizations

for their ongoing commitment to Hope in Focus.

 
Atsena
Dominion
Janssen
Simply Majestic
Spark
 

Let’s Get Social!

[fts_twitter twitter_name=SofiaSeesHope tweets_count=4 cover_photo=no stats_bar=no show_retweets=no show_replies=no]

17 hours ago

Hope in Focus
If you haven’t been following Anthony Ferraro on Instagram or TikTok, what are you waiting for? With boundless energy and positivity, Ferraro who was born with Leber congenital amaurosis (LCA) shares what it’s like to be a blind. But that’s only part — albeit a large one — of Ferraro’s story. Ferraro is training for the upcoming Paralympic Games in judo set for 2024 in Paris, with a second goal of attending the Paralympics Games in 2028 in Los Angeles. His wife, Kelly Ann, and he share their life with the world through their short-form videos you can find on TikTok, Instagram, and YouTube. If their journey interests you, stay updated by connecting with them on their social media platforms linked below.Anthony’s Website - loom.ly/ogmHLewTikTok - loom.ly/5eky1_wYouTube - loom.ly/J65bLhMInstagram - loom.ly/bKTTH7cFacebook - loom.ly/QBNEUWE #LCA #LeberCongenitalAmaurosis #HopeInFocus Image description: Anthony next to the words “Team USA” at Colorado Springs Olympic Training Center. ... See MoreSee Less
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3 days ago

Hope in Focus
Eye on the Cure, a podcast from the Foundation Fighting Blindness, interviews experts all around the world to keep up with the latest science research and news from the world of vision and retinal diseases.The podcast is available on many platforms including but not limited to Spotify, Soundcloud, Apple Podcast, Audible and more. To listen to the most recent episode, please visit the link below.loom.ly/X_Dnvmw#foundationfightingblindess #ffb #EyeontheCure #LCA #lebercongenitalamaurosis #HopeInFocus ... See MoreSee Less
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