Supporting the LCA community
We see a cure for blindness
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
[fts_twitter twitter_name=SofiaSeesHope tweets_count=4 cover_photo=no stats_bar=no show_retweets=no show_replies=no]
Hello friends! ![]()
We want to share details about an upcoming webinar hosted by the Foundation Fighting Blindness. This event will highlight the latest research advancements and provide insights into ongoing clinical trials.![]()
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To learn more and register, please visit: loom.ly/0M9nSxE.![]()
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Image Description: Dark blue background with the Foundation Fighting Blindness logo at the top. Below it, the text reads "National Chapter Webinar" with more text below reads "Clinical trials." The event date and time are listed as "Saturday, December 7, 2024 12:30 p.m. ET" Geometric lines and a colorful digital wave is featured at the bottom.![]()
#LCA #LeberCongenitalAmaurosis #HopeInFocus #BlindCommunity #LowVision #VisuallyImpaired #Inclusion #HIF
Today we visited Simply Majestic to show our appreciation and gratitude for their decade of support for Hope in Focus. From the very beginning Susette, Chuck, and the Simply Majestic team have been supporting this small nonprofit that has grown into a global advocacy organization for LCA. Small Business Saturday felt like a great day to celebrate! We are better together. ![]()
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Image Description: Simply Majestic staff and Hope in Focus staff smiling with award. Photo of award from Hope in Focus. ![]()
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#LCA #raredisease #smallbusinesssaturday #SimplyMajestic