Supporting the LCA community

We see a cure for blindness

Sofia Sees Hope Vision and Mission

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank you to these organizations

for their ongoing commitment to Hope in Focus.

 
Atsena
Dominion
Janssen
Simply Majestic
Spark
 

Let’s Get Social!

[fts_twitter twitter_name=SofiaSeesHope tweets_count=4 cover_photo=no stats_bar=no show_retweets=no show_replies=no]

1 day ago

Hope in Focus
Our fundraising event, Paddle for Sight, is just in a few days... are you joining us?To purchase tickets:loom.ly/Zihl_G4Image Description: A group photo from last year's Paddle for Sight event.#Fundraiser #paddleforsight2024 #adventuremystic #HopeInFocus #irds #awareness #LCA #lebercongenitalamaurosis #HIF ... See MoreSee Less
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3 days ago

Hope in Focus
Have you ever thought about registering for My Retina Tracker® provided by the Foundation Fighting Blindness? To learn more about these options contact: Coordinator@MyRetinaTracker.org. Link to read more is down below:loom.ly/HQcLx1o #rarediseases #myretinatracker #ffb #FoundationFightingBlindness #irds #HIF #HopeInFocus #LCA #lebercongenitalamaurosis ... See MoreSee Less
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