Supporting the LCA community
We see a cure for blindness
Join us for the LCA Family Conference!
June 20-21, 2025 • Embassy Suites, Minneapolis, MN
This conference will provide information about advances in research, deepen your understanding of various stakeholders’ roles in developing treatments, and provide an opportunity for those living with rare inherited retinal disease and those involved in developing treatments to learn from each other.
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)(3) patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
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Even a small monthly donation creates steady support we can count on—helping us plan ahead, respond with care, and reach more individuals and families affected by LCA and other inherited retinal diseases.![]()
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Your ongoing generosity, no matter the amount, fuels real change and reminds our community they’re not alone. ![]()
To donate and support the LCA and IRD community: loom.ly/hLuRVuY ![]()
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Image description: Blue and white gradient background. A graphic image of two hands, one hand with green sleeve giving a heart to other hand with blue sleeve. A graphic circle behind the two hands. Below, at the bottom of the image is the Hope in Focus logo.![]()
#LCA #LeberCongenitalAmaurosis #HopeInFocus #BlindCommunity #LowVision #VisuallyImpaired #Inclusion #RecurringGiving #Support
Are you ready to PARTY this summer?🎉![]()
Raise awareness and funds for Leber congenital amaroursis (LCA) and other inherited retinal diseases by hosting your own party with friends and family! Share some rare disease facts, and ask your guests to consider a donation. All proceeds help support Hope in Focus' mission.![]()
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Want to get started? Click here for more info: loom.ly/ScmJiKk![]()
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#LCA #lebercongenitalamaurosis #HopeInFocus #partyforsight2025 #awareness