Supporting the LCA community

We see a cure for blindness

Sofia Sees Hope Vision and Mission

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)(3) patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank you to these organizations

for their ongoing commitment to Hope in Focus.

 
Atsena
MeiraGTx
Opusgtx
Simply Majestic
 

Let’s Get Social!

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4 days ago

Hope in Focus
We are so grateful to everyone who joined us for Dinner in the Dark 2025, as well as those who supported the event from afar. With your support, raised over $190k! A special, thank you to our generous sponsors, the Dinner in the Dark committee, and are amazing volunteers to make this event possible.Checkout our blog discussing more of this year's event!: hopeinfocus.org/dinner-in-the-dark-2025/ #LCA #DinnerInTheDark #dinnerinthedark2025 #Awareness #blindness #lowvision #irds ... See MoreSee Less
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4 days ago

Hope in Focus
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