Supporting the LCA Community

We see a cure for blindness

Baby with Leber Congenital Amaurosis
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Living with LCA

Since 2014, we’ve supported the LCA community with education, resources, and connections that strengthen and unite individuals and families across the IRD community.

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Get Involved

Our donors and corporate partners drive our mission, helping us impact lives of those with LCA and rare IRDs. Learn about events, sponsorships, and partnerships.

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Finding a Cure

By supporting the ecosystem that develops treatments for blinding diseases, we can advance therapies to approval. Join us in making these breakthroughs possible.

Episode 13 graphic

Episode 13 – Inside the LCA10 Clinical Trial: A Conversation with Sepul Bio 

In this episode, we speak with Mike, Chief Operating Officer at Sepul Bio, about the company’s promising RNA therapy for LCA10, currently being studied in a Phase 3 clinical trial. Mike shares how he became involved in the inherited retinal disease space and discusses his role at Sepul Bio. We also explore the clinical trial […]

Bill and Betty Smith

Leaving a Legacy of Hope

Why consider a legacy gift For many people, charitable giving is something they do throughout their lives. Legacy giving offers a unique opportunity to extend that generosity far beyond the present moment, creating a lasting impact for future generations. Recently, longtime Hope in Focus supporters Bill and Betty Smith shared why they chose to include […]

A person taking a picture of the Dinner in the Dark sign

Dinner in the Dark

October 24, 2026 • Foxwoods Resort and Casino, Mashantucket, CT Our primary fundraiser for the year, this event is a true culinary adventure! You will enjoy a gourmet dinner while wearing a blindfold, and we keep the menu secret. Come learn about the exciting ways we are working to transform the lives of those without […]

27+

genetic mutations can cause LCA

$2.5M+

raised to support research and community programs

32+

countries in our global reach