Supporting the LCA community

We see a cure for blindness

Sofia Sees Hope Vision and Mission

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank you to these organizations

for their ongoing commitment to Hope in Focus.

 
Atsena
Dominion
Janssen
Simply Majestic
Spark
 

Let’s Get Social!

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1 day ago

Hope in Focus
Were you aware that we publish a quarterly printed and mailed newsletter called Seeing Hope?Take a moment to explore our latest issue, and don't forget to sign up to join our growing community!To learn more, visit the link listed below:loom.ly/u4JEIisImage Description: A graphic image with a white background. The top center has Hope in Focus's logo. Below, a blue text box with white text stating, "Seeing Hope" with more texting under saying, "June Newsletter". Three images with individuals from the June's newsletter latest stories sit below the text. #LCA #LeberCongenitalAmaurosis #HopeInFocus #Newsletter #SeeingHope #MonthlyUpdates ... See MoreSee Less
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3 days ago

Hope in Focus
Whether you've joined us seeking support, inspiration, or community, we welcome you!If you or someone you love is navigating life with Leber congenital amaurosis (LCA) or low vision, know that Hope in Focus is here to provide resources, encouragement, and a supportive community.Image Description: A graphic image of Hope in Focus logo center top. Below, there are stylized figures holding hearts above their heads. Underneath, there is a blue text box with white letters stating, "Welcome." with smaller text stating "Support, Resources, Community".#LCA #LeberCongenitalAmaurosis #HopeInFocus #HIF #Support #RareDisease ... See MoreSee Less
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