Supporting the LCA Community
We see a cure for blindness
Living with LCA
Since 2014, we’ve supported the LCA community with education, resources, and connections that strengthen and unite individuals and families across the IRD community.
Get Involved
Our donors and corporate partners drive our mission, helping us impact lives of those with LCA and rare IRDs. Learn about events, sponsorships, and partnerships.
Finding a Cure
By supporting the ecosystem that develops treatments for blinding diseases, we can advance therapies to approval. Join us in making these breakthroughs possible.
Learn Through Stories & Videos
What’s New
Episode 10 – Insights from a Teacher of the Visually Impaired
In this episode, we’re joined by Beth, an education consultant with the Bureau of Education Services for the Blind at the Connecticut Department of Aging and Disability Services. With more than 20 years of experience as a certified Teacher of Students with Visual Impairments (TVI), Beth supports children and their families as they navigate the […]
Bridging the Gap: Helping others see what you experience
Over the years, I’ve learned that most people don’t understand that visual impairment is a spectrum. Most people think there are three options: 20/20 vision, vision that can be corrected by glasses, or total blindness. As a child, I passed as fully sighted in most situations. When I told people that I was visually impaired, […]
Walk to Fight Rare Diseases
April 25, 2026 • Quinnipiac University campus in Hamden, CT. Join us for the Denise D’Ascenzo Foundation Walk to Fight Rare Diseases at the beautiful Quinnipiac University campus in Hamden, CT. The event honors the life of Denise D’Ascenzo and brings our community together in strong support of research and care for rare disorders. Make […]
Did You Know?
genetic mutations can cause LCA
raised to support research and community programs
countries in our global reach
Our Corporate Sponsors
