Supporting the LCA community
We see a cure for blindness
Join us for the LCA Family Conference!
June 20-21, 2025 • Embassy Suites, Minneapolis, MN
This conference will provide information about advances in research, deepen your understanding of various stakeholders’ roles in developing treatments, and provide an opportunity for those living with rare inherited retinal disease and those involved in developing treatments to learn from each other.
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)(3) patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
[fts_twitter twitter_name=SofiaSeesHope tweets_count=4 cover_photo=no stats_bar=no show_retweets=no show_replies=no]
Hope in Focus Director of Outreach and Development, Courtney Coates, attended the Retinal Therapeutics Innovation Summit on May 2, hosted by the Foundation Fighting Blindness. Key updates for the LCA community included promising clinical trial data for LCA5, insights from the Editas gene editing trial for CEP290, and a look ahead at SepulBio’s antisense therapy for LCA10. Discussions also focused on advancing clinical trial endpoints and treatments for inherited retinal diseases.![]()
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Following the summit, Hope in Focus participated in the ARVO Annual Meeting to stay engaged with emerging research and ensure the patient voice continues to shape the future of retinal disease therapies.![]()
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Image description is in the comments.![]()
#LCA #LeberCongenitalAmaurosis #HopeInFocus #BlindCommunity #LowVision #VisuallyImpaired #Inclusion #ARVO #FFB #RetinalTherapeuticsInnovationSummit #LCA5 #LCA10 #CEP290
Join us this summer to Party for Sight! ![]()
We are excited to introduce our new fundraiser to raise awareness and funds for Leber congenital amaurosis (LCA) and other inherited retinal diseases (IRDs). ![]()
Ready to start? It's simple! Plan a gathering or party with friends and family, share some rare disease facts, and ask your guests to contribute. ![]()
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To learn more, text "PARTYFORSIGHT" to 71777 or visit this link: loom.ly/ScmJiKk ![]()
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Image Description in comments.![]()
#PARTYFORSIGHT2025 #Awareness #HopeInFocus #LCA #LeberCongenitalAmaurosis #BlindCommunity #LowVision #VisuallyImpaired #Inclusion