Supporting the LCA community

We see a cure for blindness

Faded orange background with a slightly darker shade of orange around the boarders. The Party for Sight logo. Blue, orange, and green text color with a party hat above the "a" in "Party".

Join Us To Party for Sight!

May – September 7
This summer, we’re inviting you to help shine a light on LCA and other rare inherited retinal diseases (IRDs). Join our community-wide effort to raise awareness and support for Hope in Focus and our mission to advance treatments.
Host a small get-together, share facts about rare diseases, or tell your own story. Big or small, every effort helps spread awareness and brings more attention to our shared journey. Together, we can make a lasting impact that extends far beyond the summer.

Sofia Sees Hope Vision and Mission

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)(3) patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank you to these organizations

for their ongoing commitment to Hope in Focus.

 
Atsena
MeiraGTx
Opusgtx
Simply Majestic
 

Let’s Get Social!

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3 days ago

Hope in Focus
Are you aware that July is Disability Pride Month? This month recognizes the accomplishments and challenges faced by the disability community. So why July? It is the anniversary of the Americans with Disabilities Act (ADA)!Image Description: Grey background with white letters to the right side stating "July is Disability Pride Month". On the opposite corner, on the bottom of image is colors: green, blue, white, yellow, and red.#LCA #LeberCongenitalAmaurosis #HopeInFocus #DisabilityPrideMonth #Awareness ... See MoreSee Less
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