Supporting the LCA Community

We see a cure for blindness

Baby with Leber Congenital Amaurosis
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Living with LCA

Since 2014, we’ve supported the LCA community with education, resources, and connections that strengthen and unite individuals and families across the IRD community.

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Get Involved

Our donors and corporate partners drive our mission, helping us impact lives of those with LCA and rare IRDs. Learn about events, sponsorships, and partnerships.

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Finding a Cure

By supporting the ecosystem that develops treatments for blinding diseases, we can advance therapies to approval. Join us in making these breakthroughs possible.

Hope in focus podcast graphic episode 12

Episode 12: Understanding Clinical Trials with Dr. Jason Comander

Dr. Jason Comander is the Ayub Family Chair in Ophthalmology and Director of the Inherited Retinal Disorder Service at Mass Eye and Ear. He has led several groundbreaking clinical trials, including delivering the first commercial dose of LUXTURNA® for LCA2 caused by RPE65 mutations and serving as the lead investigator and surgeon for the first […]

The ARVO logo on blue background with blue text underneath saying "Report from 2026 ARVO: Several Emerging LCA Gene Therapies are Restoring Vision"

Report from 2026 ARVO: Several Emerging LCA Gene Therapies are Restoring Vision

In reporting on emerging therapies for LCA and other retinal diseases, my mantra has always been “just the facts.” If you’re old enough, you might remember those iconic words from the stoic detective Joe Friday on the TV show “Dragnet.” Bottom line, I prefer not to embellish my reporting with hyperbole or emotion. (But I […]

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Dinner in the Dark

October 24, 2026 • Foxwoods Resort and Casino, Mashantucket, CT Our primary fundraiser for the year, this event is a true culinary adventure! You will enjoy a gourmet dinner while wearing a blindfold, and we keep the menu secret. Come learn about the exciting ways we are working to transform the lives of those without […]

27+

genetic mutations can cause LCA

$2.5M+

raised to support research and community programs

32+

countries in our global reach