Supporting the LCA community

We see a cure for blindness

Sofia Sees Hope Vision and Mission

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank you to these organizations

for their ongoing commitment to Hope in Focus.

 
Atsena
Dominion
Janssen
Simply Majestic
Spark
 

Let’s Get Social!

[fts_twitter twitter_name=SofiaSeesHope tweets_count=4 cover_photo=no stats_bar=no show_retweets=no show_replies=no]

2 days ago

Hope in Focus
October is Blindness Awareness Month, highlighting the importance of understanding and supporting individuals with visual impairments. By promoting inclusivity through education, accessibility, and advocacy, we can create a community where everyone has equal opportunities to succeed.Image Description: Black text stating, "October is Blindness Awareness Month" with a graphic image of a person walking with a guide cane. Hope in Focus logo bottom right.#BlindnessAwarenessMonth #BlindCommunity #lowVision #VisuallyImpaired #Inclusion #HopeInFocus #HIF #LCA #LeberCongenitalAmaurosis ... See MoreSee Less
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4 days ago

Hope in Focus
Everyone, get ready to don your blindfolds—Dinner in the Dark is just one month away!Are you planning to join us for this exciting evening? If you haven’t secured your tickets yet, grab them through the link below. We can’t wait to share this experience with you!loom.ly/BkEI9kMImage Description: A gray border with black, orange, green, and blue stripes. In the middle, a black text box with white text stating "Dinner in the Dark", with an image of people blindfolded from last year's event. Underneath is more text stating, "Saturday, November 2, 2024. Tickets at hopeinfocus.org ". #DinnerInTheDark #DITD24 #Foxwoods #LCA #LeberCongenitalAmaurosis #HopeInFocus #HIF #Awareness ... See MoreSee Less
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