Supporting the LCA Community

We see a cure for blindness

Baby with Leber Congenital Amaurosis
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Living with LCA

Since 2014, we’ve supported the LCA community with education, resources, and connections that strengthen and unite individuals and families across the IRD community.

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Get Involved

Our donors and corporate partners drive our mission, helping us impact lives of those with LCA and rare IRDs. Learn about events, sponsorships, and partnerships.

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Finding a Cure

By supporting the ecosystem that develops treatments for blinding diseases, we can advance therapies to approval. Join us in making these breakthroughs possible.

Episode 13 graphic

Episode 13 – Inside the LCA10 Clinical Trial: A Conversation with Sepul Bio 

In this episode, we speak with Mike, Chief Operating Officer at Sepul Bio, about the company’s promising RNA therapy for LCA10, currently being studied in a Phase 3 clinical trial. Mike shares how he became involved in the inherited retinal disease space and discusses his role at Sepul Bio. We also explore the clinical trial […]

Hope in Focus Joins the Branford Lions Club for Rare Eye Disease Awareness, Advocacy and Action

Hope in Focus Joins the Branford Lions Club for Rare Eye Disease Awareness, Advocacy and Action

On October 7, Hope in Focus joined the Branford Lions Club at Quinnipiac University in Hamden, Connecticut, for “Rare Eye Diseases: Awareness, Advocacy and Action.” Held in collaboration with Quinnipiac University’s Frank H. Netter MD School of Medicine and the Denise D’Ascenzo Foundation, the event brought together local Lions Club members, patient advocacy organizations, medical […]

A person taking a picture of the Dinner in the Dark sign

Dinner in the Dark

October 24, 2026 • Foxwoods Resort and Casino, Mashantucket, CT Our primary fundraiser for the year, this event is a true culinary adventure! You will enjoy a gourmet dinner while wearing a blindfold, and we keep the menu secret. Come learn about the exciting ways we are working to transform the lives of those without […]

27+

genetic mutations can cause LCA

$2.5M+

raised to support research and community programs

32+

countries in our global reach