Supporting the LCA community
We see a cure for blindness
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
[fts_twitter twitter_name=SofiaSeesHope tweets_count=4 cover_photo=no stats_bar=no show_retweets=no show_replies=no]
Our fundraising event, Paddle for Sight, is just in a few days... are you joining us?![]()
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To purchase tickets:![]()
loom.ly/Zihl_G4![]()
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Image Description: A group photo from last year's Paddle for Sight event.![]()
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#Fundraiser #paddleforsight2024 #adventuremystic #HopeInFocus #irds #awareness #LCA #lebercongenitalamaurosis #HIF
Have you ever thought about registering for My Retina Tracker® provided by the Foundation Fighting Blindness? ![]()
To learn more about these options contact: Coordinator@MyRetinaTracker.org. ![]()
Link to read more is down below:![]()
loom.ly/HQcLx1o ![]()
#rarediseases #myretinatracker #ffb #FoundationFightingBlindness #irds #HIF #HopeInFocus #LCA #lebercongenitalamaurosis