Supporting the LCA Community
We see a cure for blindness
Living with LCA
Since 2014, we’ve supported the LCA community with education, resources, and connections that strengthen and unite individuals and families across the IRD community.
Get Involved
Our donors and corporate partners drive our mission, helping us impact lives of those with LCA and rare IRDs. Learn about events, sponsorships, and partnerships.
Finding a Cure
By supporting the ecosystem that develops treatments for blinding diseases, we can advance therapies to approval. Join us in making these breakthroughs possible.
Learn Through Stories & Videos
What’s New
Episode 9 – Vivien’s Wild Ride: Who Am I Without Vision?
Vivien Hillgrove led a remarkable 50-year career as a film editor for box office hits such as Amadeus, Blue Velvet and The Right Stuff. However, when she began losing her sight to age-related macular degeneration (AMD), she was faced with the challenge of redefining herself, how she moved through the world, and was forced to […]
Light at the End of the Tunnel: LCA6 Gene Therapy Advances Toward Clinical Trial
I am excited to report on impressive progress in the development of Odylia Therapeutics’ emerging gene therapy for retinal degeneration caused by RPGRIP1 mutations, which is most often diagnosed as LCA6. Like the journey for so many inherited retinal disease treatments and the companies that develop them, there’s a long story here ⎯ a story […]
Walk to Fight Rare Diseases
April 25, 2026 • Quinnipiac University campus in Hamden, CT. Join us for the Denise D’Ascenzo Foundation Walk to Fight Rare Diseases at the beautiful Quinnipiac University campus in Hamden, CT. The event honors the life of Denise D’Ascenzo and brings our community together in strong support of research and care for rare disorders. Make […]
Did You Know?
genetic mutations can cause LCA
raised to support research and community programs
countries in our global reach
Our Corporate Sponsors
