Supporting the LCA community
We see a cure for blindness
LCA Conference 2025
June 20-21, 2025 • Embassy Suites, Minneapolis, MN
This conference will provide information about advances in research, deepen your understanding of the roles various stakeholders play in developing treatments, and provide an opportunity for those living with IRDs and those involved in research and the development of treatments to connect and learn from one another. More information coming soon!
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Let’s Get Social!
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