FORMERLY KNOWN AS SOFIA SEES HOPE
SEEING A CURE FOR BLINDNESS
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
“It’s one thing to talk about equity, diversity, and inclusivity. It’s another thing to immerse everyone in an exercise where they feel empathy for people who have low vision and compassion for other people as they are temporarily trying that on." - Kim Cardinal Piscatelli. ![]()
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Learn how this business, Cardinal Honda, is helping its employees feel more empathy for people with vision loss and think of strategies to make the world more inclusive for them. buff.ly/3XZ5c8W
Social media is such a powerful tool for the rare disease community. We love this story about people connecting on social media to find and share their rare disease experience with others. It's what we do too for our IRD community, and why we have our Seeing a Cure for Blindness group for those living with LCA. ![]()
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www.yahoo.com/lifestyle/rare-health-issues-234305200.html
www.yahoo.com
A growing number of people with rare health conditions have found they are far from alone thanks to social media.