FORMERLY KNOWN AS SOFIA SEES HOPE
SEEING A CURE FOR BLINDNESS
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
DJ and Brendan Broadbin came to our Hope in Focus LCA Family Conference with a lot of questions about their little boy’s blindness, and they left with amazing answers leading to innovative treatment for his type of Leber congenital amaurosis (LCA).
Join us for an introduction to Atsena Therapeutics with Kara Fick, Head of Patient Advocacy, and Shannon Boye, Founder and Director. Register here: bit.ly/3EffTxu. ![]()
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We’ll talk about Atsena’s approach to gene therapy and their ongoing work in LCA in this month's Let's Chat About on Oct. 12.
Let’s Chat About…Atsena Therapeutics’ work in LCA
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Join our conversation on Atsena Therapeutics’ work in LCA with Shannon Boye and Kara Fick