Join us June 23-24, 2023
LCA FAMILY CONFERENCE
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
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Wasn't last weekend just the best? Thanks again to everyone who came out to our screening of "A Shot in the Dark" and talk back with Anthony S. Ferraro
What do we mean when we say IRDs? IRDs or Inherited Retinal Diseases are a group of rare blinding conditions caused by one of of more than 250 different genes. ![]()
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Leber congenital amaurosis is one of the most common IRDs. Learn more terms in our glossary. hopeinfocus.org/for-families/rare-retinal-disease-glossary/