Supporting the LCA community

We see a cure for blindness

Sofia Sees Hope Vision and Mission

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank you to these organizations

for their ongoing commitment to Hope in Focus.

 
Atsena
Dominion
Janssen
Simply Majestic
Spark
 

Let’s Get Social!

[fts_twitter twitter_name=SofiaSeesHope tweets_count=4 cover_photo=no stats_bar=no show_retweets=no show_replies=no]

1 day ago

Hope in Focus
Join us in Chicago on June 21-22 to hear from Sumaira Latif, the driving force behind Procter & Gamble's inclusive revolution and the keynote speaker at this year's VISIONS 2024 Conference! More information about the conference is linked below:loom.ly/PLBg9F4Image Description: Sam Latif's headshot is on the right side. To the left is a dark blue box with the VISIONS 2024 logo at the top, followed by text that reads "Keynote Speaker. Sumaira 'Sam' Latif. Senior Director, Company Accessibility Leader, Global People with Disabilities Leader, Procter & Gamble." #LCA #LeberCongenitalAmaurosis #HopeInFocus #FoundationFightingBlindness #FFB #Visions2024 ... See MoreSee Less
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