Join us June 23-25, 2023
LCA FAMILY CONFERENCE
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
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We're thrilled to announce Shannon Boye of Atsena Therapeutics, Wiley Chambers from the U.S. Food and Drug Administration and more rare disease specialists will be speaking at the LCA Family Conference. Find the full speaker list and register to attend today. na.eventscloud.com/ehome/728240/1214060/
The word of the week is cones. DYK?: The retina has approximately 120 million rods and 6 million cones. Our glossary is a great resource for people navigating rare inherited retinal diseases and their families. hopeinfocus.org/for-families/rare-retinal-disease-glossary/![]()
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Image: Description: Cones are one of two types of photoreceptors in the retina. They deliver color vision and help discern fine details. They are concentrated in the center of the retina in an area called the macula.