Supporting the LCA community
We see a cure for blindness
Join us for the LCA Family Conference!
June 20-21, 2025 • Embassy Suites, Minneapolis, MN
This conference will provide information about advances in research, deepen your understanding of various stakeholders’ roles in developing treatments, and provide an opportunity for those living with rare inherited retinal disease and those involved in developing treatments to learn from each other.
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
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We're getting excited for next week!![]()
The Walk to Fight Rare Diseases, hosted by the Denise D’Ascenzo Foundation at Quinnipiac University in Hamden, CT, brings together organizations to raise funds and awareness for rare diseases. Hope in Focus will be there supporting the LCA community. We’d love to see you there!![]()
Sign up under Team Zebra or help us reach our goal: loom.ly/AZ1DR1Y![]()
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Image Description: Background of zoomed in picture of white shoes walking. Bottom right is the Denise D'Ascenzo Foundation Walk to Fight Rare Diseases logo.![]()
#LCA #LeberCongenitalAmaurosis #HopeInFocus #BlindCommunity #LowVision #VisuallyImpaired #Inclusion #WalkToFightRareDiseases #RareDisease
We’d love for you to support our team, whether that means making a donation or lacing up your shoes and walking with us!![]()
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Sign up under Hope in Focus, start your own fundraiser if you'd like, and join Team Zebra. We're excited to come together, have some fun, and raise money for those affected by rare diseases.![]()
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To support and sign up: loom.ly/k5uF1so ![]()
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Image Description in comments.![]()
#LCA #LeberCongenitalAmaurosis #HopeInFocus #BlindCommunity #LowVision #VisuallyImpaired #Inclusion #RareDiseases #WalkToFightRareDiseases #WalkToFightRareDiseases2025