Supporting the LCA Community
We see a cure for blindness
Living with LCA
Since 2014, we’ve supported the LCA community with education, resources, and connections that strengthen and unite individuals and families across the IRD community.
Get Involved
Our donors and corporate partners drive our mission, helping us impact lives of those with LCA and rare IRDs. Learn about events, sponsorships, and partnerships.
Finding a Cure
By supporting the ecosystem that develops treatments for blinding diseases, we can advance therapies to approval. Join us in making these breakthroughs possible.
Learn Through Stories & Videos
What’s New
Episode 10 – Insights from a Teacher of the Visually Impaired
In this episode, we’re joined by Beth, an education consultant with the Bureau of Education Services for the Blind at the Connecticut Department of Aging and Disability Services. With more than 20 years of experience as a certified Teacher of Students with Visual Impairments (TVI), Beth supports children and their families as they navigate the […]
Hope in Focus Strengthens Advocacy Through PPALS Training
On May 4-7, Hope in Focus Marketing and Community Engagement Manager, Eve Orcutt, participated in the Professional Patient Advocates in Life Sciences (PPALS) program at the Sanford Research Center, earning her Patient Advocacy Certificate Training (PACT). The Sanford Research Center hosts the largest registry in the U.S. for patients with rare diseases, primarily children. Work […]
Dinner in the Dark
October 24, 2026 • Foxwoods Resort and Casino, Mashantucket, CT Our primary fundraiser for the year, this event is a true culinary adventure! You will enjoy a gourmet dinner while wearing a blindfold, and we keep the menu secret. Come learn about the exciting ways we are working to transform the lives of those without […]
Did You Know?
genetic mutations can cause LCA
raised to support research and community programs
countries in our global reach
Our Corporate Sponsors
