LCA and IRD Resources
Being diagnosed with any rare disease is overwhelming. No two ways about it.
Being diagnosed with LCA or another IRD also means navigating a very confusing and fragmented landscape of information, resources, and a lot of acronyms and really long words (like LHON and choroideremia).
Are you an RPE65 family? Spark Therapeutics needs your help!
What Do I Do Now?
We’ve broken it down into three manageable bits.
The A to Z on LCA and IRDs
Basic information, research updates and links to learn more.
Connect With Families
You’re not alone! Find resources to connect with families, as well as other organizations.
Learn About Clinical Trials
Information and links.
Industry Partners & News
Information and programs from our industry partners.
Our LCA Family Newsletter
It’s coming. Sign up now!
Videos
Watch our informative videos.
Blog
Read our latest industry-related blog posts.