Supporting the LCA community

We see a cure for blindness

Sofia Sees Hope Vision and Mission

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank you to these organizations

for their ongoing commitment to Hope in Focus.

 
Spark
Simply Majestic
Dominion
MeiraGTx
Janssen
agtc
 

Let’s Get Social!

[fts_twitter twitter_name=SofiaSeesHope tweets_count=4 cover_photo=no stats_bar=no show_retweets=no show_replies=no]

2 days ago

Hope in Focus
More than 300 million people are affected by rare diseases worldwide and access to healthcare is often a problem. Rare diseases are often complicated by a lack of information regarding diagnosis and often treatments don't exist or are not widely available or affordable. #rarediseaseawareness #healthequity ... See MoreSee Less
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5 days ago

Hope in Focus
If you or a loved one has been recently diagnosed with Leber congenital amaurosis (LCA), know that you're not alone. Hope in Focus is here to provide support, resources, and a community for those navigating life with low vision. #supportforlca #HopeInFocus ... See MoreSee Less
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