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Let’s Chat About … the importance of the patient voice in rare disease

September 29, 2021 @ 1:00 pm - 2:00 pm


Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities to join any of the sessions, as we look ahead to a common goal of advancing treatments for rare retinal disease.

Jill Dolgin, PharmD, Head of Patient Advocacy, Applied Genetic Technologies
Corporation (AGTC)

Let’s Chat About … the importance of the patient voice in rare disease.

head shot of smiling womanDr. Dolgin leads the patient and professional engagement strategy to drive disease awareness and clinical trial recruitment
efforts for the AGTC pipeline. She is responsible for incorporating the voice of the patient throughout drug development and corporate culture. She has over 20 years of global biopharmaceutical experience in Medical Affairs, Corporate Communications, Patient and Professional Advocacy, and Public Policy.

Her role within the company is to ensure that the needs of the patients are considered and incorporated into every aspect of drug development. Externally, Jill works with patient advocacy groups to educate patients and families about the importance of participating in clinical trials, gene therapy and the importance of “getting your voices heard” to help consumers, healthcare professionals, and policy makers understand your challenges in living with your disease. Dr. Dolgin earned a Doctorate in Clinical Pharmacy from the University of the Sciences at Philadelphia and a Bachelor of Science degree in Pharmacy from The Ohio State University.


September 29, 2021
1:00 pm - 2:00 pm
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