Latest Past Events

Let’s Chat About…Opus Genetics

Ben Yerxa, Co-Founder & President, Opus Genetics Let’s Chat About … Opus Genetics Ben Yerxa, PhD, is Co-Founder & President of Opus Genetics. Founded in 2021, Opus Genetics is a patient-first, science-driven gene therapy company tackling manufacturing obstacles standing in the way of treatments for ultra-rare blinding conditions. Dr. Yerxa will speak about the Opus […]

Let’s Chat About … Self-Advocacy and Supporting Your Child’s Education

Beth Borysewicz, State of CT Department of Aging and Disability Services; Bureau of Ed. Services for the Blind Let’s Chat About … Self-Advocacy in the Classroom Beth Borysewicz is the Vice Chair on the Hope in Focus Board of Directors, and is an Education Consultant for the Department of Aging and Disabilities, Bureau of Education […]

Hope in Focus Rare Scavenger Hunt 2022

Are you ready for some fun? Back by popular demand for its third year, this event is a great way to have some fun while driving awareness for rare disease and raising funds for treatment for Leber congenital amaurosis, a rare form of retinal blindness.  Grab your family, friends, or co-workers and form a team […]

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