A Pentatonix Christmas Tour
Mohegan Sun 1 Mohegan Sun Blvd, Uncasville, CT, United StatesA Pentatonix Christmas Tour at Mohegan Sun Arena Skybox!
$80
Events
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A Rare Opportunity
Lake of Isles 1 Clubhouse Dr, North Stonington, CT, United StatesPlease join us for an evening to raise awareness of rare inherited retinal disease. Join us to learn about vision lost and vision gained and issues facing those with rare disease. Featuring: Nicole Kear, bestselling author of the memoir “Now I See You,” about her diagnosis with retinitis pigmentosa. Christian Guardino, Howie Mandel's 2017 […]
New Kids On The Block: The Mixtape Tour
Mohegan Sun 1 Mohegan Sun Blvd, Uncasville, CT, United StatesNKOTB Mixtape Tour at Mohegan Sun Arena Skybox Wednesday, July 3, 2019 7:00 p.m. Buy Your Tickets! New Kids On The Block launched their biggest tour in years in May, and Sofia Sees Hope has scored a skybox at Mohegan Sun Arena! Join us as we travel down Memory Lane on THE MIXTAPE TOUR with […]
LCA Family Conference 2019
Warwick Rittenhouse Square 220 S 17TH ST, PHILADELPHIA, PA, United StatesJoin Sofia Sees Hope for its 2nd LCA Family Conference in Philadelphia. In multiple sessions, hear the latest in research, treatments, education, and advocacy in the Leber congenital amaurosis and inherited rare disease communities. Families living with LCA or IRDs connect in a convivial atmosphere of shared stories and mutual support. 2019 CONFERENCE INFORMATION
NORD Connecticut Rare Action Network Rare Disease Day 2020
Connecticut State Legislative Office Building 300 Capitol Avenue, Hartford, CT, United StatesPlease join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event on Rare Disease Day to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Connecticut.
CANCELED: A Rare Opportunity: New York Times Bestselling Author Kody Keplinger
La Grua Center 32 Water Street, Stonington, CT, United StatesWE HOPE TO RESCHEDULE IN THE FALL. Sofia Sees Hope presents "A Rare Opportunity: Kody Keplinger," New York Times bestselling author who lives with Leber congenital amaurosis. Kody Keplinger was born and raised in small town western Kentucky, where she began her writing career after penning The New York Times bestseller, The DUFF, at age […]
Visions 2020
Hyatt Regency Minneapolis 1300 Nicollet Mall, Minneapolis, MN, United StatesJoin Sofia Sees Hope at VISIONS 2020, the national conference of the Foundation Fighting Blindness, a one-of-a-kind event in which individuals who are visually impaired, and their families, have the opportunity to hear about exciting advancements in blindness research. All attendees can gain practical skills for thriving with vision loss, learn about products and services that […]
A Toast To Treatments: A Fundraiser to Benefit LCA and Rare IRD Treatments & Community
A unique blend of history and mixology, with two-time James Beard Award-winner and Master Mixologist Dale DeGroff, (aka King of Cocktails). Invite a few friends, fire up the Zoom, and join Dale and Erik Andersson, Eastern Region Ambassador for Hendrick’s Gin, for "The Evolution of the Martini: From 1888 to the New Millennium." James Beard […]
$150
Webinar: Let’s Chat About … the Latest in LCA Therapy Research
Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We've developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities […]
Free
Sofia Sees Hope Book Club: Read “Lila and Hadley”
Welcome to the inaugural Sofia Sees Hope Book Club! This club is especially made for middle school-age kids who are visually impaired. It will be moderated by Sofia Priebe, a high school senior in Connecticut who has vision loss due to Leber congenital amaurosis (LCA). The Book Club will meet weekly on Zoom beginning Monday, […]