SANDBOX — Supporting the LCA community – SANDBOX

We see a cure for blindness

Sofia Sees Hope Vision and Mission

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank you to these organizations

for their ongoing commitment to Hope in Focus.

 
Spark
Simply Majestic
Dominion
Atsena
Janssen
 

Let’s Get Social!

[fts_twitter twitter_name=SofiaSeesHope tweets_count=4 cover_photo=no stats_bar=no show_retweets=no show_replies=no]

6 days ago

Hope in Focus
In the latest episode of the Eye on the Cure podcast, host Ben Shaberman chats with Dr. Francois Paquet-Durand from the University of Tübingen and co-founder of Mireca. They explore the journey behind a promising, Foundation-funded drug for treating certain forms of retinitis pigmentosa.Tune in by clicking the link below.loom.ly/8DwNoFo #FoundationFightingBlindness #IRD #LCA #LeberCongenitalAmaurosis #HopeInFocus #EyeOnTheCureImage Description: A blue background with the Eye on the Cure logo at the top, with the headshot of Dr. Francois Paquet-Durand to the left and text to the right stating "Episode 69: Dr. Francois Paquet-Durand" Below the text is another stating, "Listen to the Latest Podcast Episode Out now." The Foundation Fighting Blindness logo placed bottom left. ... See MoreSee Less
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1 week ago

Hope in Focus
VISIONS2024 have been published and are available for both video and audio formats!Whether you missed the live event or want to revisit the valuable discussions, these recordings provide an excellent opportunity to engage with the innovative ideas and expert insights shared during the sessions.Access the recordings today and continue the conversation, the link is located below.loom.ly/ppM4bCE#ffb #visions2024 #FoundationFightingBlindness #IRD #LCA #lebercongenitalamaurosis #HopeInFocusImage Description: A large room with tables filled with sitting people. On the stage to the right is the speaker, Sam Latif. ... See MoreSee Less
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