SANDBOX — Supporting the LCA community – SANDBOX
We see a cure for blindness
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
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Last Thursday we teamed up with our friends at Adventure Mystic to host our first Paddle for Sight on the picturesque Mystic River. ![]()
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THANK YOU to all who came out to participate and raise awareness for ![]()
Leber congenital amaurosis, LCA. ![]()
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The weather was absolutely stunning and we had so much fun going up and down the river, taking in the views. ![]()
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We look forward to making this an annual event!![]()
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Image description: photo and video reel of participants from the paddle fundraiser on the Mystic River. ![]()
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#firstannual #paddlefundraiser #paddleforsight #HIF #HopeInFocus #LCA #lcaawareness![]()
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www.instagram.com/reel/CxafDznrk0F/?igshid=MzRlODBiNWFlZA==
LAST CHANCE TO REGISTER! ![]()
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📍 Location: Mystic River, in collaboration with Adventure Mystic![]()
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⏳ You MUST REGISTER for this event! Reserve your paddle tonight! ![]()
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🔗 Eventbrite for tickets! ![]()
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www.eventbrite.com/e/paddle-for-sight-tickets-412037233457![]()
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Image description: text that reads special event www.hopeinfocus.org @hopeinfocus1 Paddle for sight, with a cartoon paddler, green star bursts and a photo of stacked kayaks. ![]()
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#HopeInFocus #paddlefundraiser