Supporting the LCA community
We see a cure for blindness
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
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Purchasing a home is an exciting yet nerve-wracking experience, especially for Jack, who is visually impaired and looking for a house that meets his accessibility needs. Recognizing the challenges, Jack shares his lessons from the process to help individuals and families navigate similar situations.![]()
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To read more about this, click this link: loom.ly/RnmSK_0![]()
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Image Description: Jack with his guide dog, Baloo.![]()
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#LCA #lebercongenitalamaurosis #HopeInFocus #blindcommunity #lowvision #visuallyimpaired #inclusion