Supporting the LCA community
We see a cure for blindness
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
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February is Low Vision Awareness Month👁️![]()
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This month, we are raising awareness and offering support to improve the lives of those with low vision. Share and like this post to help spread the word!![]()
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#LowVisionAwarenessMonth #LCA #LeberCongenitalAmaurosis #HopeInFocus #BlindCommunity #LowVision #VisuallyImpaired #Inclusion ![]()
Image Description: Blue background with green graphic eyes. White text stating, "February is Low Vision Awareness Month" with white lines above and below text. Underneath is black and white dotted eye graphic. Below graphic is the white Hope in Focus logo.
Scientists with disabilities are pushing for more accessible research spaces, from labs to fieldwork. By introducing adaptive technologies and thoughtful design changes, they’re helping make science more inclusive for everyone. ![]()
Want to know how they’re doing it? Check out the full article here: loom.ly/qHklyFg![]()
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Image Description: Taormina Lepore, foreground, who has low vision, walks with a white cane during an accessible field trip to the San Andreas Fault organized by the International Association of Geoscience Diversity. (AP Photo/Ryan Sun)![]()
#DisabilityInSTEM #InclusiveResearch #Accessibility #BlindCommunity #LowVision #VisuallyImpaired #Inclusion