Supporting the LCA community
We see a cure for blindness
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
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On this episode of the Eye on the Cure podcast, Damon Lembi, CEO of Learnit, former college baseball star, and dedicated father, joins host Ben Shaberman to share his journey of growth and his experience learning about his inherited retinal disease.![]()
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Listen to the podcast now: loom.ly/NthVV8k![]()
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Image Description: Blue background with Foundation Fighting Blindness logo top left and Eye on the Cure logo top right. White text in center stating "Listen to the Latest podcast Episode Out Now" with head shop of host Ben Shaberman and guest Damon Lembi.![]()
#LCA #LeberCongenitalAmaurosis #HopeInFocus #BlindCommunity #LowVision #VisuallyImpaired #Inclusion
What is the difference between gene editing and gene therapy?![]()
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Gene editing involves altering, removing, or replacing a mutated gene at the DNA level. In contrast, gene therapy addresses the mutation’s impact by adding a functional copy of the gene, while the mutated gene remains in the genome. ![]()
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Image Description: A white background with a blue geometric-shaped molecule. A blue border around the blue text, as stated above. Below is the Hope in Focus logo.![]()
#LCA #LeberCongenitalAmaurosis #HopeInFocus #BlindCommunity #LowVision #VisuallyImpaired #Inclusion