Supporting the LCA community
We see a cure for blindness
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
[fts_twitter twitter_name=SofiaSeesHope tweets_count=4 cover_photo=no stats_bar=no show_retweets=no show_replies=no]
The Advanced Research Projects Agency for Health (APRA-H) granted up to $46 million to eight research groups to fund research to advance whole eye transplantation technologies. Led by the University of Colorado Anschutz Medical Campus, the six-year project focuses on overcoming challenges like optic nerve regeneration and vision signal connectivity. ![]()
“We are closer than ever to realizing the potential of vision restoration, and as a person impacted by a blinding retinal disease, I look forward to recovery of my vision through breakthroughs achieved in the THEA program.” said Karen Petrou, chair of the Foundation Fighting Blindness board.![]()
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For more information and full article: loom.ly/g8gzEiM ![]()
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Image Description: A female scientist, wearing a white lab coat and light-blue nitrile gloves, is working with a microscope in a laboratory setting. The background of the image shows a bright, sterile laboratory environment. ![]()
#BlindCommunity #LowVision #VisuallyImpaired #Inclusion #LCA #LeberCongenitalAmaurosis #HopeInFocus #HIF
A big thank you to those who joined us last Friday for the Straight No Chaser concert. It was wonderful to see familiar faces and our community come together. That night, we raised almost $2,000 to help support and promote awareness for the rare disease community! ![]()
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Image description: first image shows the overview of the stage with flashlights from the audience. Second photo is a closer picture of the stage, pink screen behind the acapella group stating “Top Shelf, Straight No Chaser” with a design of a martini glass and ornaments inside. Third picture is another zoomed out picture of the concert with people watching. ![]()
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#LCA #Fundraiser #HopeInFocus #Awareness #IRDs