Supporting the LCA community

We see a cure for blindness

Sofia Sees Hope Vision and Mission

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank you to these organizations

for their ongoing commitment to Hope in Focus.

 
Spark
Simply Majestic
Dominion
Atsena
Janssen
 

Let’s Get Social!

[fts_twitter twitter_name=SofiaSeesHope tweets_count=4 cover_photo=no stats_bar=no show_retweets=no show_replies=no]

23 hours ago

Hope in Focus
Whether you've joined us seeking support, inspiration, or community, we welcome you!If you or someone you love is navigating life with Leber congenital amaurosis (LCA) or low vision, know that Hope in Focus is here to provide resources, encouragement, and a supportive community.Image Description: A graphic image of Hope in Focus logo center top. Below, there are stylized figures holding hearts above their heads. Underneath, there is a blue text box with white letters stating, "Welcome." with smaller text stating "Support, Resources, Community".#LCA #LeberCongenitalAmaurosis #HopeInFocus #HIF #Support #RareDisease ... See MoreSee Less
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5 days ago

Hope in Focus
The latest episode of Eye on the Cure is now available! 👁️Dr. Peter Campochiaro from Johns Hopkins University School of Medicine discusses N-acetylcysteine (NAC), a drug that could potentially preserve cone vision for individuals with retinitis pigmentosa.Click the link below to listen to the newly released podcast:loom.ly/g1LHFFsImage Description: A blue background with the Eye on the Cure logo at the top, with a headshot of Dr. Peter Campochiaro to the left and text to the right stating, "Episode 67: Dr. Peter Campochiaro." Below the text is another stating, "Listen to the Latest Podcast Episode Out now." The Foundation Fighting Blindness logo placed bottom left. #LCA #LeberCongenitalAmaurosis #HopeInFocus #FFB #FoundationFightingBlindness #EyeOnTheCure ... See MoreSee Less
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