Supporting the LCA community
We see a cure for blindness
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank you to these organizations
for their ongoing commitment to Hope in Focus.
Let’s Get Social!
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If you're looking for someone to chat with or seeking connections with families affected by Leber congenital amaurosis (LCA) or another rare inherited retinal disease (IRD), our Family Connections program is here to support you.![]()
We connect you with others who truly understand your journey. If you are interested, you can fill out the form on our website by following the link below, and our Hope in Focus team will get in touch.![]()
Link to our Family Connections program: loom.ly/5kkHGw8![]()
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#HopeInFocus #HIF #LCA #LeberCongenitalAmaurosis #FamilyConnections #IRD #InheritedRetinalDisease
Happy Holidays from our team to you! ![]()
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#BlindCommunity #LowVision #VisuallyImpaired #Inclusion #LCA #LeberCongenitalAmaurosis #HopeInFocus