LCA and IRD Resources
Being diagnosed with any rare disease is overwhelming. No two ways about it.
Being diagnosed with LCA or another IRD also means navigating a very confusing and fragmented landscape of information, resources, and a lot of acronyms and really long words (like LHON and choroideremia).
Are you an RPE65 family? Spark Therapeutics needs your help!
Connect With Families
You’re not alone! Find resources to connect with families, as well as other organizations.