Life Through a Different Lens: They Just Talked About Eyes!
Christine and Anthony Gonzales dreamed of having a large family and were thrilled when their first child, Iliana, was born in August 2018. However, within a few months, their excitement […]
Through the Eyes of Love: Just James!
Caitlin and Greg Smith eagerly looked forward to the birth of their fourth child, who would complete their busy family of two girls and a boy. Caitlin’s pregnancy was unremarkable, […]
MEET ANTHONY FERRARO: Social Media Star, Professional Athlete, Musician, and Dad Living with LCA
Prepare to be inspired by Anthony Ferraro, the featured speaker at our major fundraising event, Dinner in the Dark, on November 2, 2024, at Foxwoods Resort Casino in Mashantucket, Connecticut. [...]
LIGHT IN THE DARKNESS: From an LCA Diagnosis to Advocacy in Turkey
Toprak Kulekci is a vivacious, seven-year-old budding ballerina who lives with her parents in Ankara, Turkey. When she was born in 2017, her father, Haydar, a software engineer, and mother, […]
A TREATMENT JOURNEY: Jumping Hurdles, Taking Risks
“If someone told me that having access to perfect vision tomorrow meant not having impaired vision for my entire life, I would not change the past. While my visual impairment […]
HOPE IN ACTION: A Conversation with Laura Manfre
How did Hope in Focus begin? In 2013, after our daughter, Sofia, was diagnosed with Leber congenital amaurosis (LCA) IQCB1/NPHP5, the Foundation for Retinal Research (FRR) asked if my husband [...]
Hope in Focus Joins the Denise D’Ascenzo Walk to Fight Rare Diseases
Hope in Focus, a nonprofit 501(c)3 rare disease advocacy organization based in Ledyard, Connecticut, is partnering for the first time with the Denise D’Ascenzo Foundation Walk to Fight Rare [...]