News

Nothing is more hopeful or gratifying for the retinal disease community than an emerging or FDA-approved therapy that provides vision to people with advanced retinal disease. Such is the case [...]

We are pleased to announce that the 2025 LCA Family Conference will be hosted at the Embassy Suites in Minneapolis, Minnesota, from Friday, June 20 to Saturday, June 21, 2025. […]

Hope in Focus will host its signature fundraising event of the year – Dinner in the Dark – on Saturday, Nov. 2, 2024, at Foxwoods Resort Casino in Mashantucket, CT. […]

In December 2023, ProQR sold its sepofarsen (LCA10) and ultevursen (USH2A) programs to Théa, a large European biotechnology company focused on ophthalmology. Théa, through its new dedicated [...]

We are pleased to announce that Hope in Focus has been awarded a $5,000 grant on September 3, 2024, from Amgen through their #RAREis Global Advocate Grant prog ram. This […]

Hope in Focus Director of Outreach and Development Courtney Coates attended the ARVO Annual Meeting on behalf of the organization to learn more about current LCA research to raise awareness […]

Hope in Focus, a nonprofit 501(c)3 rare disease advocacy organization based in Ledyard, Connecticut, is partnering for the first time with the Denise D’Ascenzo Foundation Walk to Fight Rare [...]

Allison Wolf, whose 9-year-old son Elliot lives with the encroaching blindness of Leber congenital amaurosis (LCA), spoke directly to staff from the country’s regulatory agency to help them [...]

Hope in Focus will host its signature fundraising event of the year – Dinner in the Dark – on Saturday, Oct. 14, 2023, at the Mystic Marriott Hotel & Spa […]

Hope in Focus will host a fundraising event called A Rare Opportunity on June 4, 2023, at United Theatre in Westerly. Included will be a viewing of the award-winning film […]