A Spectacular Return to Dinner in the Dark 2022
Our 7th Annual Dinner in the Dark came off as an exciting evening of hope and fun, and an opportunity to foster and connect with the mission of Hope in […]
We’re On A Roll With 30 Percent More Survey Responses & We’re Keeping the Survey Open for Another Month to Include More Participants
Please respond by Aug. 31, 2022 We’ve received 30 percent more responses in July to our Hope in Focus Leber Congenital Amaurosis (LCA) Community Survey, and we’re hoping to reach […]
Time to Take the Hope in Focus LCA Community Survey
Responses Needed By July 29, 2022 Telling your story helps bring the Leber congenital amaurosis (LCA) community together. It also helps rare retinal disease advocates like us at Hope in […]
Hope in Focus Heading to VISIONS 2022 National Conference
Foundation Fighting Blindness begins its VISIONS 2022 national conference tomorrow, and Hope in Focus will be there to hear the latest research advances for Leber congenital amaurosis (LCA) and [...]
Former Pfizer Executive Appointed to Hope in Focus Board
David Schulz has been appointed to our Board of Directors. He began his career at Pfizer Central Research as a Research Scientist in 1989 and was promoted to Executive Director […]
Scientists Share LCA Research at Annual Vision and Ophthalmology Conference
Thousands of scientists gathered in Denver for the annual conference of the Association for Research in Vision and Ophthalmology, known as ARVO, and, in my new role as Outreach & […]
Hope In Focus Statement for Connecticut’s Rare Disease Day
Celebrating Connecticut Rare Disease Day 2022, Hope in Focus presented remarks Friday, February 25, 2022, to the Connecticut State Legislature on behalf of those living with Leber congenital [...]
Hope in Focus Makes $300,000 Pledge for LCA Treatments
The big news just keeps coming: fresh off the rebranding from Sofia Sees Hope to Hope in Focus, we are pleased to announce a pledge to raise $300,000 by 2025 […]
A Rebrand for Sofia Sees Hope: New Name, Same Mission
Ledyard, CT (October 19, 2021) — Sofia Sees Hope, a nonprofit that has been raising research funding and awareness around Leber congenital amaurosis (LCA) and other rare inherited retinal [...]
Sofia Sees Hope Launches Web Series To Educate, Connect Rare Retinal Disease Community
Sofia Sees Hope, a nonprofit patient advocacy organization dedicated to working with those affected by blindness caused by rare inherited retinal disease (IRD), is launching a monthly web series [...]