• About
    • Our Story
    • Our Vision/Mission
    • Our Team
    • Hope in Focus Ambassadors
    • Pressroom
  • Living with LCA
    • What is LCA?
    • ID Your Gene
    • Clinical Trials
    • Family Connections
  • Community
    • Community News
    • Resources
    • Rare Retinal Disease Glossary
  • Events
    • LCA Conference 2025
    • Dinner in the Dark
    • Photo Gallery
  • Contact
    • Get in Touch
    • Newsletter
  • DONATE
    Leber Congenital Amaurosis Leber Congenital Amaurosis Leber Congenital Amaurosis Leber Congenital Amaurosis
    • About
      • Our Story
      • Our Vision/Mission
      • Our Team
      • Hope in Focus Ambassadors
      • Pressroom
    • Living with LCA
      • What is LCA?
      • ID Your Gene
      • Clinical Trials
      • Family Connections
    • Community
      • Community News
      • Resources
      • Rare Retinal Disease Glossary
    • Events
      • LCA Conference 2025
      • Dinner in the Dark
      • Photo Gallery
    • Contact
      • Get in Touch
      • Newsletter
    • DONATE

    News

    0
    By Ben Shaberman
    In News
    Posted November 14, 2024

    LCA5 Gene Therapy Provides Vision Improvements in Clinical Trial

    Nothing is more hopeful or gratifying for the retinal disease community than an emerging or FDA-approved therapy that provides vision to people with advanced retinal disease. Such is the case [...]

    READ MORE
    0
    By Eve Orcutt
    In News
    Posted November 6, 2024

    HIF Announces Location for the LCA Conference 2025

    We are pleased to announce that the 2025 LCA Family Conference will be hosted at the Embassy Suites in Minneapolis, Minnesota, from Friday, June 20 to Saturday, June 21, 2025. […]

    READ MORE
    0
    By Courtney Coates
    In News
    Posted October 24, 2024

    Dinner in the Dark: A Culinary Adventure to Raise Funds Retinal Disease

    Hope in Focus will host its signature fundraising event of the year – Dinner in the Dark – on Saturday, Nov. 2, 2024, at Foxwoods Resort Casino in Mashantucket, CT. […]

    READ MORE
    0
    By Ben Shaberman
    In News
    Posted September 22, 2024

    Théa Forms Sepul Bio to Advance RNA Therapies for LCA10 and USH2A into Clinical Trials

    In December 2023, ProQR sold its sepofarsen (LCA10) and ultevursen (USH2A) programs to Théa, a large European biotechnology company focused on ophthalmology. Théa, through its new dedicated [...]

    READ MORE
    0
    By Eve Orcutt
    In News
    Posted September 3, 2024

    Hope in Focus Awarded a $5,000 RAREis Global Advocate Grant from Amgen

    We are pleased to announce that Hope in Focus has been awarded a $5,000 grant on September 3, 2024, from Amgen through their #RAREis Global Advocate Grant prog ram. This […]

    READ MORE
    0
    By Courtney Coates
    In News
    Posted June 18, 2024

    Hope in Focus Updates from the Association for Research in Vision and Ophthalmology Annual Meeting

    Hope in Focus Director of Outreach and Development Courtney Coates attended the ARVO Annual Meeting on behalf of the organization to learn more about current LCA research to raise awareness […]

    READ MORE
    0
    By Katherine Kraines
    In News
    Posted April 1, 2024

    Hope in Focus Joins the Denise D’Ascenzo Walk to Fight Rare Diseases

    Hope in Focus, a nonprofit 501(c)3 rare disease advocacy organization based in Ledyard, Connecticut, is partnering for the first time with the Denise D’Ascenzo Foundation Walk to Fight Rare [...]

    READ MORE
    0
    By Paul H. Hebner
    In Blog, News
    Posted December 7, 2023

    Hope in Focus Brings Voices of People Living with LCA Directly to the FDA

    Allison Wolf, whose 9-year-old son Elliot lives with the encroaching blindness of Leber congenital amaurosis (LCA), spoke directly to staff from the country’s regulatory agency to help them [...]

    READ MORE
    0
    By Sofia Sees Hope
    In News
    Posted September 27, 2023

    Hope in Focus presents Dinner in the Dark: A One-of-a-Kind Sensory and Culinary Experience

    Hope in Focus will host its signature fundraising event of the year – Dinner in the Dark – on Saturday, Oct. 14, 2023, at the Mystic Marriott Hotel & Spa […]

    READ MORE
    0
    By Courtney Coates
    In News
    Posted May 18, 2023

    Hope in Focus to Host Screening of A Shot in the Dark and Talkback with Blind Athlete Anthony Ferraro

    Hope in Focus will host a fundraising event called A Rare Opportunity on June 4, 2023, at United Theatre in Westerly. Included will be a viewing of the award-winning film […]

    READ MORE
    1 2 3 4 5 6
    page 1 of 6
    Sign Up for Our Newsletter
    NEWSLETTER SIGN UP
    Get In Touch
    • 860-266-6062
    • info@hopeinfocus.org
    Follow Us
    Hope in Focus is a 501(C)(3). © All rights reserved.
    Please read our Privacy Promise.
    Skip to content
    Open toolbar Accessibility Tools

    Accessibility Tools

    • Increase TextIncrease Text
    • Decrease TextDecrease Text
    • GrayscaleGrayscale
    • High ContrastHigh Contrast
    • Negative ContrastNegative Contrast
    • Light BackgroundLight Background
    • Links UnderlineLinks Underline
    • Readable FontReadable Font
    • Reset Reset
    By continuing to use our website, you acknowledge the use of cookies.OkPrivacy policy