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    Archives

    Monthly Archive for: "July, 2022"
    0
    By Rosanne Smyle
    In News
    Posted July 31, 2022

    We’re On A Roll With 30 Percent More Survey Responses & We’re Keeping the Survey Open for Another Month to Include More Participants

    Please respond by Aug. 31, 2022 We’ve received 30 percent more responses in July to our Hope in Focus Leber Congenital Amaurosis (LCA) Community Survey, and we’re hoping to reach […]

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    0
    By Rosanne Smyle
    In Blog
    Posted July 26, 2022

    Connecticut Legislature Establishes Permanent Rare Disease Advisory Council

    Connecticut Gov. Ned Lamont signed into law years-in-the-making legislation establishing a permanent Rare Disease Advisory Council (RDAC), effective July 1, 2022. Lesley Bennett, Volunteer [...]

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    0
    By Rosanne Smyle
    In News
    Posted July 18, 2022

    Time to Take the Hope in Focus LCA Community Survey

    Responses Needed By July 29, 2022 Telling your story helps bring the Leber congenital amaurosis (LCA) community together. It also helps rare retinal disease advocates like us at Hope in […]

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    0
    By Rosanne Smyle
    In Blog
    Posted July 14, 2022

    Let’s Chat About…Gene-Independent Therapies for Inherited Retinal Diseases with Dr. Daniel C. Chung

    We’ve heard a lot about therapies to correct mutations in specific genes causing blindness or low vision, and now research is moving beyond single-gene correction to gene-independent therapies to [...]

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