Enzo was born in 2014 in Lausanne, Switzerland, with a clubfoot. He immediately received physical therapy, then a plaster cast for three months and one minor surgery. His parents – […]
Sofia Sees Hope, a nonprofit focused on families living with Leber congenital amaurousis (LCA), will launch a quarterly newsletter in the fall of 2017. SSH funds research for diagnosis, [...]
Scott and Heather Soady and big sister Gillian welcomed baby Juliet two years ago, and life progressed in an understandably hectic way for the San Diego parents who also are […]
There was nothing in my life to prepare me for the experience of Dinner in the Dark. I’ve supported many nonprofits, as a board member, consultant, and donor. I’ve been […]
Birdies for Charity is a great program that we joined this year to help us raise awareness about Leber congenital amaurosis (LCA) and to help raise funds to cure LCA […]
Being blind, or living with someone who is, requires all sorts of adaptation and flexibility. Creating a nonprofit to cure blindness caused by rare inherited retinal diseases like Leber [...]
Wondering what has been served at Dinner in the Dark over the years? Here are the menus! Dinner in the Dark 2024 This year, we celebrated the 10th anniversary […]
Hey LCA or IRD family, does any of this sound familiar? You or your child has received a clinical diagnosis of LCA (leber congenital amaurosis), RP (retinitis pigmentosa), cone-rod dystrophy, [...]
“We can all make our lives much happier if we choose to laugh, live our lives more intentionally and find joy in the little things.” The quote above is from […]