Rare Disease Day is a global event when we raise awareness of some of the 7,000 different rare diseases. Although each disease on its own is rare, amazingly 1 in 10 Americans is living with a rare disease! The goal of RDD is to connect patients, families, caregivers, and patient organizations; to provide opportunities for patients and parents to share their stories; and to promote education, awareness, and advocacy.
SSH board member Shanda Easley and her daughter Helena, who is currently seeking a clinical diagnosis for gradual vision loss, will be in attendance.
Held in Room MNH 101 in the Frank H. Netter MD School of Medicine.
Please register in advance.