Connecticut Rare Disease Day Advocacy Event
February 28, 2018 at 8:30 am
Legislative Office Building, 300 Capitol Avenue, Hartford, CT 06106
The goal of advocacy events is to draw attention to rare diseases as an important public health issue that cannot be ignored. This is an opportunity for patients, caregivers, medical professionals and industry representatives to come together and educate elected officials about rare diseases and what it’s like to live with or care for someone with a rare disease in the state.