• Let’s Chat About … Genetic Testing

    Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities […]

    Free
  • Let’s Chat About … natural history and patient outcome studies

    Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities […]

  • Let’s Chat About … My Retina Tracker

    Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities […]

  • Let’s Chat About … The Importance of Self Advocacy

    Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We've developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities […]

    Free
  • Let’s Chat About … the importance of the patient voice in rare disease

    Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities […]

    Free
  • Let’s Chat About … CRISPR and gene editing technology

    Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We've developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities […]

    Free
  • Let’s Chat About … Gene Therapy for LCA

    Join us as we chat with Michel Michaelides, (BSc MB BS MD(Res) FRCOphth FACS) a Founding Member of MeiraGTx and Professor of Ophthalmology, UCL Institute of Ophthalmology in Dept. of Genetics. He is a Consultant Ophthalmologist at Moorfields Eye Hospital in Depts. Of Inherited Eye Disease, Medical Retina and Paediatric Ophthalmology. MeiraGTX saw statistically significant […]

    Free
  • Let’s Chat About … ProQR’s work in treatments for inherited retinal disease

    Hope in Focus is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We've developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities […]

    Free
  • Let’s Chat About … Self-Advocacy and Supporting Your Child’s Education

    Beth Borysewicz, State of CT Department of Aging and Disability Services; Bureau of Ed. Services for the Blind Let’s Chat About … Self-Advocacy in the Classroom Beth Borysewicz is the Vice Chair on the Hope in Focus Board of Directors, and is an Education Consultant for the Department of Aging and Disabilities, Bureau of Education […]

  • Let’s Chat About…Opus Genetics

    Ben Yerxa, Co-Founder & President, Opus Genetics Let’s Chat About … Opus Genetics Ben Yerxa, PhD, is Co-Founder & President of Opus Genetics. Founded in 2021, Opus Genetics is a patient-first, science-driven gene therapy company tackling manufacturing obstacles standing in the way of treatments for ultra-rare blinding conditions. Dr. Yerxa will speak about the Opus […]

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