Association for Research in Vision and Ophthalmology (ARVO)

May 7-10, Baltimore, Association for Research in Vision and Ophthalmology (ARVO) – thousands of doctors, sessions are very scientific, good opportunity to schedule networking meetings and connect with other vision-related nonprofit organizations http://www.arvo.org/AM/Default.aspx

American Society of Gene and Cell Therapy

Washington, DC, May 10-12, American Society of Gene and Cell Therapy – very specific, more corporate, lots of therapy and research updates – they hold other events for advocacy groups http://www.asgct.org/meetings-educational-programs/asgct-annual-meetings/2017-annual-meeting

Support the LCA Community with Birdies for Charity!

Sofia Sees Hope has joined The Travelers Championship PGA golf tournament’s Birdies for Charity program, and we hope you will join us! Birdies for Charity is a pledge-based fundraiser. Sofia Sees Hope can earn donations based upon the number of birdies made during the 2017 Travelers Championship, June 19-25, 2017.  By pledging an amount per birdie, […]

American Society of Retina Specialists

August 11-15, Boston, American Society of Retina Specialists – very relevant and specialized, possibility of free day passes, at least to the exhibit hall, for nonprofit organizations https://www.asrs.org/annual-meeting

Global Genes

September 14-15, Irvine, California, Global Genes – exclusively for rare disease advocacy groups http://globalgenes.cvent.com/events/2017-rare-patient-advocacy-summit/event-summary-b667f7db423b463f80ab2ef70b16b4a7.aspx

Dinner in the Dark

October 14 - Dinner in the Dark LEARN MORE ABOUT THIS EVENT

National Organization for Rare Disorders (NORD) annual Breakthrough Summit

October 16-17, Washington DC, National Organization for Rare Disorders (NORD)  annual Breakthrough Summit – information about advocacy, they have meetings for members, might meet potential collaborators https://rarediseases.org/summit-overview/

American Academy of Ophthalmology

November 11-14, New Orleans – American Academy of Ophthalmology, thousands of people and very scientific https://www.aao.org/annual-meeting

2018 Rare Disease Day at Quinnipiac University

Frank H. Netter MD School of Medicine 370 Bassett Rd, North Haven, Connecticut

Rare Disease Day is a global event when we raise awareness of some of the 7,000 different rare diseases. Although each disease on its own is rare, amazingly 1 in 10 Americans is living with a rare disease! The goal of RDD is to connect patients, families, caregivers, and patient organizations; to provide opportunities for […]

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