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    Archives

    Monthly Archive for: "December, 2018"
    0
    By Rosanne Smyle
    In Blog
    Posted December 20, 2018

    Natural History Studies Vital to Finding Treatments for Rare Diseases

    The lack of information on rare diseases can create difficulty in developing drugs to treat them. To help, it is important to study the natural history of rare diseases. Compared with […]

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    0
    By Rosanne Smyle
    In Blog
    Posted December 13, 2018

    Living with LCA: ‘It does no good to have pity’

    Mikayla Larson, a 30-year-old mother living with a rare inherited retinal disease (IRD) called Leber congenital amaurosis (LCA) wants to reassure children living with the same disease that [...]

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