July 2022 - Hope in Focus

Posted July 31, 2022

We’re On A Roll With 30 Percent More Survey Responses & We’re Keeping the Survey Open for Another Month to Include More Participants

Please respond by Aug. 31, 2022 We’ve received 30 percent more responses in July to our Hope in Focus Leber Congenital Amaurosis (LCA) Community Survey, and we’re hoping to reach […]

By Rosanne Smyle

In Blog

Posted July 26, 2022

Connecticut Legislature Establishes Permanent Rare Disease Advisory Council

Connecticut Gov. Ned Lamont signed into law years-in-the-making legislation establishing a permanent Rare Disease Advisory Council (RDAC), effective July 1, 2022. Lesley Bennett, Volunteer [...]

By Rosanne Smyle

In News

Posted July 18, 2022

Time to Take the Hope in Focus LCA Community Survey

Responses Needed By July 29, 2022 Telling your story helps bring the Leber congenital amaurosis (LCA) community together. It also helps rare retinal disease advocates like us at Hope in […]

By Rosanne Smyle

In Blog

Posted July 14, 2022

Let’s Chat About…Gene-Independent Therapies for Inherited Retinal Diseases with Dr. Daniel C. Chung

We’ve heard a lot about therapies to correct mutations in specific genes causing blindness or low vision, and now research is moving beyond single-gene correction to gene-independent therapies to [...]