A TREATMENT JOURNEY: Jumping Hurdles, Taking Risks
“If someone told me that having access to perfect vision tomorrow meant not having impaired vision for my entire life, I would not change the past. While my visual impairment […]
HOPE IN ACTION: A Conversation with Laura Manfre
How did Hope in Focus begin? In 2013, after our daughter, Sofia, was diagnosed with Leber congenital amaurosis (LCA) IQCB1/NPHP5, the Foundation for Retinal Research (FRR) asked if my husband [...]
Hope in Focus Joins the Denise D’Ascenzo Walk to Fight Rare Diseases
Hope in Focus, a nonprofit 501(c)3 rare disease advocacy organization based in Ledyard, Connecticut, is partnering for the first time with the Denise D’Ascenzo Foundation Walk to Fight Rare [...]