News

Ledyard, CT (October 19, 2021) — Sofia Sees Hope, a nonprofit that has been raising research funding and awareness around Leber congenital amaurosis (LCA) and other rare inherited retinal [...]

Sofia Sees Hope, a nonprofit patient advocacy organization dedicated to working with those affected by blindness caused by rare inherited retinal disease (IRD), is launching a monthly web series [...]

Ledyard, CT (January 13, 2021) — Sofia Sees Hope will donate $72,000 to support research into treatments for inherited retinal diseases (IRDs), including Leber congenital amaurosis (LCA), and to [...]

Sofia Sees Hope is launching a Book Club for middle school-aged kids with visual impairments. It will be moderated by Sofia Priebe, a high school senior in Connecticut for which […]

Sofia Sees Hope donated more than $100,000 at the end of 2019 to support research into treatments for inherited retinal diseases (IRDs), including Leber congenital amaurosis (LCA), and to provide [...]

This year at the sixth Dinner in the Dark on Saturday, October 19, at the Mystic Marriott Hotel & Spa, guests are being encouraged to “show their stripes!” Recognizing that […]

Ledyard, CT (June 11, 2019) — Laura Manfre of Ledyard, CT, a co-founder of Sofia Sees Hope, has been named a National Trustee by the Foundation Fighting Blindness. Sofia Sees […]

(May 22, 2019) — Sofia Sees Hope received two grants in May from southeastern Connecticut organizations that will be used to help cover travel expenses for families to attend its […]

Sofia Sees Hope supports The Faster Treatments and Cures for Eye Diseases Act, H.R. 6421. We join Foundation Fighting Blindness (FFB), the Association for Research in Vision and Ophthalmology, [...]

A $100,000 donation from Sofia Sees Hope will support research into restoring vision for patients diagnosed with Leber congenital amaurosis (LCA). The grant will also provide access to genetic [...]