Last week Sofia Sees Hope signed on to a letter to Congress urging it to keep in place the Orphan Drug Tax Credit, which allows drug manufacturers to claim a […]
Tickets are on sale for the annual culinary adventure, Dinner In the Dark, taking place Saturday, October 14, 2017 at the Mystic Marriott Hotel & Spa. Now in its fourth […]
Cromwell, CT (May 30, 2017) — Sofia Sees Hope is pleased to announce it has joined The Travelers Championship PGA golf tournament’s Birdies for Charity program, a pledge-based fundraiser that [...]
Save the Date! October 14, 2017 Mystic Marriott, Groton, CT For more information on the Dinner in the Dark, including tickets, sponsorship opportunities and more visit our event page.
(Feb. 23, 2017) — On Feb. 28, World Rare Disease Day, Sofia Sees Hope launches its second annual Blindfold Breakfast Challenge, a social media campaign designed to bring awareness to […]
(WTNH) — At the age of 2, Sofia’s parents knew something was wrong. She was falling and tripping, a diagnosis told them their daughter had Leber’s Congential Amorrosis or L.C.A. […]
