Dinner in the Dark

October 14 - Dinner in the Dark LEARN MORE ABOUT THIS EVENT

National Organization for Rare Disorders (NORD) annual Breakthrough Summit

October 16-17, Washington DC, National Organization for Rare Disorders (NORD)  annual Breakthrough Summit – information about advocacy, they have meetings for members, might meet potential collaborators https://rarediseases.org/summit-overview/

American Academy of Ophthalmology

November 11-14, New Orleans – American Academy of Ophthalmology, thousands of people and very scientific https://www.aao.org/annual-meeting

2018 Rare Disease Day at Quinnipiac University

Frank H. Netter MD School of Medicine 370 Bassett Rd, North Haven, Connecticut

Rare Disease Day is a global event when we raise awareness of some of the 7,000 different rare diseases. Although each disease on its own is rare, amazingly 1 in 10 Americans is living with a rare disease! The goal of RDD is to connect patients, families, caregivers, and patient organizations; to provide opportunities for […]

CT Rare Disease Day 2018

CT Legislative Office Building 300 Capitol Avenue, Hartford, CT, United States

Connecticut Rare Disease Day Advocacy Event February 28, 2018 at 8:30 am Legislative Office Building, 300 Capitol Avenue, Hartford, CT 06106 The goal of advocacy events is to draw attention to rare diseases as an important public health issue that cannot be ignored.  This is an opportunity for patients, caregivers, medical professionals and industry representatives to […]

Webinar: Know Your Gene

You or someone you know has LCA, RP or some other rare retinal disease. But do you know what your genetic mutation is? Where to go for testing and how you can access free testing? How to work with a genetic counselor? Maybe you know the exact genetic mutation - but do you know what's […]

Free

VISIONS 2018 National Conference

VISIONS, the national conference of the Foundation Fighting Blindness, is the only event of its kind—created solely for individuals and families who are affected by retinal diseases. Find access to information on the latest retinal research and clinical trials, the doctors performing the work, and other families from around the country living with the same […]

A Pentatonix Christmas Tour

Mohegan Sun 1 Mohegan Sun Blvd, Uncasville, CT, United States

A Pentatonix Christmas Tour at Mohegan Sun Arena Skybox!

$80

A Rare Opportunity

Lake of Isles 1 Clubhouse Dr, North Stonington, CT, United States

  Please join us for an evening to raise awareness of rare inherited retinal disease. Join us to learn about vision lost and vision gained and issues facing those with rare disease. Featuring: Nicole Kear, bestselling author of the memoir “Now I See You,” about her diagnosis with retinitis pigmentosa. Christian Guardino, Howie Mandel's 2017 […]

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