VISION BEYOND SIGHT: The Power of Community
It can be easy to feel alone living with an inherited retinal disease (IRD). As a kid, only one other person in my school had a visual impairment. Recently, I […]
Spring on the Road
May and June were busy travel months full of opportunities and learning for me as Director of Outreach and Development for Hope in Focus. Each year, I attend the Association […]
Hope in Focus Joins the Denise D’Ascenzo Walk to Fight Rare Diseases
Hope in Focus, a nonprofit 501(c)3 rare disease advocacy organization based in Ledyard, Connecticut, is partnering for the first time with the Denise D’Ascenzo Foundation Walk to Fight Rare [...]
Hope in Focus Grateful for 2023 Dinner in the Dark Success
So much more than a typical fundraiser, the 8th Hope in Focus Dinner in the Dark we advertised as “a unique sensory experience,” gave guests just that and much more […]
Hope in Focus presents Dinner in the Dark: A One-of-a-Kind Sensory and Culinary Experience
Hope in Focus will host its signature fundraising event of the year – Dinner in the Dark – on Saturday, Oct. 14, 2023, at the Mystic Marriott Hotel & Spa […]
Plans in the Works for Connecticut’s New Rare Disease Advisory Council and 2023 Rare Disease Day
Advocates for people living with rare diseases are collaborating with Connecticut Gov. Ned Lamont’s office and leaders of the Connecticut General Assembly’s Public Health Committee to build the [...]
A Spectacular Return to Dinner in the Dark 2022
Our 7th Annual Dinner in the Dark came off as an exciting evening of hope and fun, and an opportunity to foster and connect with the mission of Hope in […]
Connecticut Legislature Establishes Permanent Rare Disease Advisory Council
Connecticut Gov. Ned Lamont signed into law years-in-the-making legislation establishing a permanent Rare Disease Advisory Council (RDAC), effective July 1, 2022. Lesley Bennett, Volunteer [...]
Let’s Chat About…Gene-Independent Therapies for Inherited Retinal Diseases with Dr. Daniel C. Chung
We’ve heard a lot about therapies to correct mutations in specific genes causing blindness or low vision, and now research is moving beyond single-gene correction to gene-independent therapies to [...]
Let’s Chat About…Advancing Treatments into Clinical Trials with Ben Shaberman
Innovative funding initiatives created by the Foundation Fighting Blindness are accelerating research advances to find treatments for Leber congenital amaurosis (LCA) and other rare inherited [...]