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Heather Le’s anxiety accompanying her daughter’s diagnosis of Leber congenital amaurosis melted into relief when she connected with a mom whose daughter was also born with LCA. And this mom […]

Join Sofia Sees Hope for its 2nd LCA Family Conference in Philadelphia. In multiple sessions, hear the latest in research, treatments, education, and advocacy in the Leber congenital amaurosis [...]

Sofia Sees Hope published Seeing Hope, its first newsletter in October, a keystone of its advocacy and outreach program for families living with Leber congenital amaurosis. “The goal of [...]

Sofia Sees Hope, a nonprofit focused on families living with Leber congenital amaurousis (LCA), will launch a quarterly newsletter in the fall of 2017. SSH funds research for diagnosis, [...]

This year’s Dinner in the Dark at Foxwoods was a tremendous success, raising over $225,000 and welcoming 330 attendees. Because of the immense support of everyone who joined us for […]

Hope in Focus will host its signature fundraising event of the year – Dinner in the Dark – on Saturday, Nov. 2, 2024, at Foxwoods Resort Casino in Mashantucket, CT. […]

“If someone told me that having access to perfect vision tomorrow meant not having impaired vision for my entire life, I would not change the past. While my visual impairment […]

How did Hope in Focus begin? In 2013, after our daughter, Sofia, was diagnosed with Leber congenital amaurosis (LCA) IQCB1/NPHP5, the Foundation for Retinal Research (FRR) asked if my husband [...]

Apply today to join our team! If the job description below sounds like a fit for you, please apply via Indeed using the button below. Part-time writer / editor position […]

Through global data sharing and analysis, the nonprofit RARE-X (the research arm of Global Genes) is working to accelerate treatments for rare diseases, including Leber congenital amaurosis (LCA) [...]