Hope in Focus Podcast
The Hope in Focus Podcast, hosted by Ben Shaberman, Vice President of Science Communications at the Foundation Fighting Blindness, delivers monthly conversations with individuals and families, caregivers, researchers, and advocates in the LCA and IRD community. Each episode shares personal stories, research and scientific updates—including gene therapy and drug development—tools and resources that support accessibility and independence, and insights to help families better understand early-onset vision loss. Whether you’re personally affected or simply curious, each episode offers hope, knowledge, and connection. Select a platform below to listen on your favorite streaming service.
Recent Podcasts
Episode 4 Part 1 – The Start of a Guide Dog’s Journey
Join Ben Shaberman with Jeanyne Gembarski, Region Puppy Instructor in the Puppy Raising Program, and Annemarie Seifert, volunteer Puppy Raiser,…
Episode 3 – Behind the Scenes: Patient Advocacy in Gene TherapyBehind the Scenes: Patient Advocacy in Gene Therapy
In this episode of the Hope in Focus Podcast, host Ben Shaberman is joined by Kara Fick, Director of Patient…
Episode 2 – Growing Up with Vision Loss: Challenges, Humor, and Wisdom
In this episode of The Hope in Focus Podcast, host Ben Shaberman sits down with Elle St. Arnaud and Jack…
Episode 1 – The LCA Journey: Two Parents’ Perspectives/Get to know the Hope in Focus founding
In this inaugural episode, host Ben Shaberman talks with Laura Manfre and David Brint—founders of two leading organizations in the…