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    Archives

    Monthly Archive for: "December, 2017"
    0
    By Eissa Bass
    In News
    Posted December 20, 2017

    Sofia Sees Hope Lauds FDA Approval of LUXTURNA™

    LUXTURNA™ (voretigene neparvovec), is the first pharmacologic treatment for inherited retinal disease and the first gene therapy for a genetic disease in the US Ledyard, CT (Dec. 19, 2017) — […]

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    0
    By Sofia Sees Hope
    In Blog
    Posted December 15, 2017

    Making Connections: Nightstar Therapeutics

    I was so happy to recently speak with Samantha Vieira, Senior Director of Program Management of Nightstar Therapeutics. Nightstar is a leading clinical-stage gene therapy company focused on [...]

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    0
    By Rosanne Smyle
    In Blog
    Posted December 14, 2017

    Living with LCA: Life Through Vicky’s Eyes

    Preschooler Vittoria shrieks with delight as she bounds down the cobblestone way, toward the big statue of the angel riding a chariot. Later we see the almost-4-year-old, nicknamed Vicky, tossing [...]

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    0
    By Eissa Bass
    In News
    Posted December 4, 2017

    Sofia Sees Hope Expands Board of Directors

    Ledyard, CT (Dec. 4, 2017) — Sofia Sees Hope, a Ledyard, CT-based patient advocacy organization dedicated to transforming the lives of those affected by blindness caused by Leber congenital [...]

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    0
    By Rosanne Smyle
    In Blog
    Posted December 1, 2017

    RPE65 Trial Patient Tami Morehouse: “There’s So Much To See”

    Tami Morehouse made research history in the Leber congenital amaurosis world, and in the nation, when at age 44 she became the oldest person in a successful LCA-RPE65 genetic therapy […]

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