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    • About
      • Our Story
      • Our Vision/Mission
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      • We’re hiring: Hope in Focus Staff Writer
      • Pressroom
    • For Families
      • What is LCA?
      • ‘Let’s Chat About…’
      • ID Your Gene
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      • Resources
      • Rare Retinal Disease Glossary
      • Family Connections
      • Hope in Focus Ambassadors
    • Stories
      • Posts & Videos
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      • Dave Matthews Band Concert – Nov 13
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      • LCA Conference 2023
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    Archives

    Monthly Archive for: "January, 2018"
    0
    By Eissa Bass
    In News
    Posted January 31, 2018

    ‘Seeing Hope’ newsletter, January 2018 issue

    Click here to download the January 2018 issue of our ‘Seeing Hope’ newsletter.  

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    0
    By Rosanne Smyle
    In Blog
    Posted January 21, 2018

    First, Diagnosis. Then, Genetic Testing. It’s Important.

    My Retina Tracker is a free and secure online registry launched by the Foundation Fighting Blindness that helps connect families dealing with rare inherited retinal diseases to feel less alone, [...]

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    0
    By Rosanne Smyle
    In Blog
    Posted January 10, 2018

    Living with LCA: Brandon Biggs

    Brandon Biggs was diagnosed with vision loss — and ultimately with Leber congenital amaurosis (LCA) — as a toddler. His genetic mutation is LCA-CRB1, which can cause LCA, retinitis pigmentosa [...]

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    0
    By Sofia Sees Hope
    In Blog
    Posted January 10, 2018

    Being Married to Brandon: “A Precious Exercise of Mindfulness”

    By Claudia Zaghi-Biggs When I met Brandon in September 2014, I thought that I was talking to the most interesting person I had ever met. Not only was he the […]

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    0
    By Sofia Sees Hope
    In Blog
    Posted January 10, 2018

    Atom Biggs: ‘The Greatest Adventure of My Life”

    By Atom Biggs Raising a blind son has been one of the most exciting and inspiring experiences a dad can ever have. I’d like to tell you a little about […]

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    0
    By Rosanne Smyle
    In Blog
    Posted January 10, 2018

    Sonja Biggs: “My Normal and His Normal Are Just Different”

    Brandon Biggs is the chief financial officer with his mother Sonja in their company, he conducts accessibility research and he helps businesses make their software content more accessible to the [...]

    READ MORE
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