LCA5 Gene Therapy Development Could be Accelerated Thanks to New FDA Rare Disease Review Process

Blue background with the Opus Genetics logo center. Below in blue text, "FDA Rare Disease Process May Speed LCA5 Gene Therapy"

Opus Genetics’ emerging LCA5 gene therapy, OPGx-LCA5, has been accepted into the US Food & Drug Administration’s (FDA) new Rare Diseases Evidence Principles (RDEP) process for providing greater speed and predictability for the review of therapies intended for diseases with a significant unmet need affecting fewer than 1,000 people.

LCA5 is a rare inherited retinal disease causing blindness or severe vision loss in childhood.

The RDEP process can allow potential FDA approval based on one adequate and well-controlled study plus additional robust confirmatory evidence, which may include: strong mechanistic or biomarker evidence; evidence from relevant non-clinical models; clinical pharmacodynamic data; and case reports, expanded access data, or natural history studies.

OPGx-LCA5 is currently being evaluated in a Phase 1/2 clinical trial at the University of Pennsylvania. Vision gains and positive safety results for the treatment for adult and pediatric trial participants have been reported. Enrollment for an adaptive Phase 3 clinical trial is ongoing. OPGx-LCA5 has also received Rare Pediatric Disease, Orphan Drug, Regenerative Medicine Advanced Therapy (RMAT) designations from the FDA.

Opus Genetics is a Hope in Focus partner.