Recent News
Hope in Focus Invites Community to Join the Walk to Fight Rare Diseases
Hope in Focus, a nonprofit 501(c)3 rare disease advocacy organization based in Ledyard, Connecticut, is partnering with the Denise D’Ascenzo…
Content Editor – Part-Time, Remote
Hope in Focus | Part-time | Remote Hope in Focus is a 501(c)(3) rare disease advocacy organization supporting a global…
Community Story Writer – Part-Time, Remote
Hope in Focus | Part-time | Remote Hope in Focus is a 501(c)(3) rare disease advocacy organization supporting a global…
LCA5 Gene Therapy Provides Vision Improvements in Clinical Trial
Nothing is more hopeful or gratifying for the retinal disease community than an emerging or FDA-approved therapy that provides vision…
Celebrating Community and Impact — Dinner in the Dark 2025
This year marked our 10th Dinner in the Dark, held on November 1 at Foxwoods Resort Casino — a milestone…
Hope in Focus to Host Signature Fundraiser, Dinner in the Dark, Nov. 1 at Foxwoods
Hope in Focus, a nonprofit organization dedicated to advancing treatments and support for Leber congenital amaurosis (LCA), will host its…
Volunteer Opportunity: Writer/Editor for Short-Term Project
We’re in the process of relaunching the Hope in Focus website, and we need the help of a professional writer/editor…
Hope in Focus Names Courtney Coates as Executive Director
Ledyard, CT — [6/30/2024] — Hope in Focus, a nonprofit organization dedicated to supporting individuals and families affected by Leber…
Hope in Focus to Host LCA Family Conference June 20-21
Ledyard, Connecticut (6/4/2025) —Hope in Focus, a nonprofit dedicated to advancing treatments and cures for blindness caused by the rare…