Feeling the Mission

There was nothing in my life to prepare me for the experience of Dinner in the Dark. I’ve supported many nonprofits, as a board member, consultant, and donor. I’ve been to many luncheons and galas where I heard many speeches, sat through many tug-at-the-heartstrings videos, and joined in many silent or live auctions that inflicted varying degrees of pain or entertainment. However, never have I attended an event that immersed me as deeply in the mission of the organization as Dinner in the Dark did.

It’s pretty basic. Hope in Focus (formally Sofia Sees Hope) fights rare, inherited retinal diseases like Leber congenital amaurosis (LCA) in hopes of curing blindness. Dinner in the Dark offers a multi-course, gourmet meal with wine pairings. While blindfolded. To say it’s challenging, and life-altering, is putting it mildly.

It’s harder to enjoy a fine meal when you can’t appreciate the presentation. Sometimes it was even hard to tell what was served, though the scents and tastes were tantalizingly familiar! It’s hard to carry on a conversation when you can’t make eye contact to interrupt, or to share a joke, and when you don’t even know if someone is still at the table. And it’s hard to savor nice wines when you can’t see them – especially when you’re afraid of knocking over a wineglass while attempting to locate your knife.

Don’t get me wrong – Dinner in the Dark is a tremendously fun event that will have you laughing and reflecting for months afterward. It’s also very challenging and very moving, and will make you truly appreciate the gift of your eyesight. And the ability to take off the blindfold to bid and to dance!

Love Golf? Hate Golf? Both Can Help Cure IRDs and LCA!

Birdies for Charity is a great program that we joined this year to help us raise awareness about Leber congenital amaurosis (LCA) and to help raise funds to cure LCA and other rare inherited retinal disease (IRD). For golfers, it’s a chance to be part of the Travelers Tournament, a decades-long tradition that brings the PGA tour’s top players to Connecticut. For non-golfers, it’s an easy, fun way to help Hope in Focus (formally Sofia Sees Hope) by making a pledge as low as two cents per birdie.

It’s very simple and works like a walk-a-thon. People pledge some amount per birdie, just like they might pledge some amount per mile walked in a disease walk-a-thon. In this case, they usually pledge anywhere from two cents to one dollar per birdie, because professional golfers are likely to make about 1800 birdies during the tournament.

Birdies for Charity logo

This part is for the non-golfers! A birdie means they hit “one under par” for a given golf hole. Par is the number of strokes (times you hit a golf ball) a person is likely to need to get the ball in the hole. A professional is expected to do much, much better than the average golfer, so they would normally be under par most of the time, requiring fewer strokes than normal people would. So they make a lot of birdies!

For the real golfers and fans, we have a limited number of day passes available for people who pledge. First come, first served, so click here to go to our dedicated Birdies for Charity page now!