The Importance of Newborn Screening
Newborn screening is essential for identifying genetic conditions, such as Leber congenital amaurosis (LCA), at the earliest possible stage. As LCA...
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Working to Create Rare Disease Advisory Councils in all 50 States
Fifteen states done, 35 to go. Fifteen states have established a Rare Disease Advisory Council (RDAC) to give the rare disease community,...
Which States Have Rare Disease Advisory Councils?
15 states with an established Rare Disease Advisory Council: Alabama, Kentucky, Illinois, Massachusetts, Minnesota, Missouri, Nevada, New Hampshire, New York,...
Register Now for LCA-CRX Webinar Set for July 15
Drew’s Beacon for Blindness and Foundation Fighting Blindness are hosting a webinar Wednesday, July 15, at 4:30 p.m. EST on current research involving LCA-CRX,...
Shaberman Combines Love of Science, Writing in Sci-Fi Novel Debut
Ben Shaberman – Senior Director of Scientific Outreach & Community Engagement at Foundation Fighting Blindness – combines his skills in science and storytelling...
#KnowYourGene: AGTC Working On Multiple IRD Treatments
Applied Genetic Technologies Corporation (AGTC), a clinical stage biotech company that focuses on rare inherited retinal diseases (IRDs), develops therapies that...