Dinner in the Dark
October 14 - Dinner in the Dark LEARN MORE ABOUT THIS EVENT
Events
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National Organization for Rare Disorders (NORD) annual Breakthrough Summit
October 16-17, Washington DC, National Organization for Rare Disorders (NORD) annual Breakthrough Summit – information about advocacy, they have meetings for members, might meet potential collaborators https://rarediseases.org/summit-overview/
American Academy of Ophthalmology
November 11-14, New Orleans – American Academy of Ophthalmology, thousands of people and very scientific https://www.aao.org/annual-meeting
2018 Rare Disease Day at Quinnipiac University
Frank H. Netter MD School of Medicine 370 Bassett Rd, North Haven, ConnecticutRare Disease Day is a global event when we raise awareness of some of the 7,000 different rare diseases. Although each disease on its own is rare, amazingly 1 in […]
CT Rare Disease Day 2018
CT Legislative Office Building 300 Capitol Avenue, Hartford, CT, United StatesConnecticut Rare Disease Day Advocacy Event February 28, 2018 at 8:30 am Legislative Office Building, 300 Capitol Avenue, Hartford, CT 06106 The goal of advocacy events is to draw attention to […]
Webinar: Know Your Gene
You or someone you know has LCA, RP or some other rare retinal disease. But do you know what your genetic mutation is? Where to go for testing and how […]
Free
Global Genes and EveryLife Foundation for Rare Diseases RARE on the Road Rare Disease Leadership Tours
RARE on the Road brings critical education and insights to rare disease patients, advocates and caregivers, while collaborating in an interactive, engaging environment. Topics include the Patients’ Role and Drug […]
VISIONS 2018 National Conference
VISIONS, the national conference of the Foundation Fighting Blindness, is the only event of its kind—created solely for individuals and families who are affected by retinal diseases. Find access to […]
A Pentatonix Christmas Tour
Mohegan Sun 1 Mohegan Sun Blvd, Uncasville, CT, United StatesA Pentatonix Christmas Tour at Mohegan Sun Arena Skybox!
$80
A Rare Opportunity
Lake of Isles 1 Clubhouse Dr, North Stonington, CT, United StatesPlease join us for an evening to raise awareness of rare inherited retinal disease. Join us to learn about vision lost and vision gained and issues facing those with […]