Let’s Chat About … The Importance of Self Advocacy
Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We've developed the series with […]
Free
Events
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Let’s Chat About … the importance of the patient voice in rare disease
Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with […]
Free
Let’s Chat About … CRISPR and gene editing technology
Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We've developed the series with […]
Free
Bidding in the Dark
Yes, we are asking you to tap your inner adventurer and philanthropist and bid on items that you might not have all the details around. We call it, Bidding in […]
Let’s Chat About … Gene Therapy for LCA
Join us as we chat with Michel Michaelides, (BSc MB BS MD(Res) FRCOphth FACS) a Founding Member of MeiraGTx and Professor of Ophthalmology, UCL Institute of Ophthalmology in Dept. of […]
Free
A Toast to Treatments: Holiday Edition
Ring in the holidays when you join us for a unique blend of holiday cheer, history and mixology, with James Beard Award Winner Mixologist Dale DeGroff, (aka King of […]
$50
Let’s Chat About … ProQR’s work in treatments for inherited retinal disease
Hope in Focus is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We've developed the series with […]
Free
Hope in Focus Rare Scavenger Hunt 2022
Are you ready for some fun? Back by popular demand for its third year, this event is a great way to have some fun while driving awareness for rare disease […]
Let’s Chat About … Self-Advocacy and Supporting Your Child’s Education
Beth Borysewicz, State of CT Department of Aging and Disability Services; Bureau of Ed. Services for the Blind Let’s Chat About … Self-Advocacy in the Classroom Beth Borysewicz is the […]
Let’s Chat About…Opus Genetics
Ben Yerxa, Co-Founder & President, Opus Genetics Let’s Chat About … Opus Genetics Ben Yerxa, PhD, is Co-Founder & President of Opus Genetics. Founded in 2021, Opus Genetics is a […]