Community Stories & Education
Life Through a Different Lens: They Just Talked About Eyes!
Christine and Anthony Gonzales dreamed of having a large family and were thrilled when their first child, Iliana, was born in August 2018. However, within a few months, their excitement turned to concern. “About a week after Iliana received her…
Most Recent
My Friend Luca: Balancing Hope and Reality
Three-year-old Luca Corso’s preschool teacher announced that everyone should quickly sit on their floor shapes for carpet time. As the…
Moving Forward: Understanding More about Clinical Trials
The second panel session of the 2025 LCA Family Conference, “Participating in a Clinical Trial,” examined clinical trial development and…
Living with IRDs: Insights and Inspiration from the Front Lines
The 2025 LCA Family Conference in Minneapolis, MN, offered four informational panel sessions, where the 135 attendees learned about living…
FROM THE WALL: Pushing Boundaries, Building Confidence
Throughout her 29 years, Michelle Ward Caton has embraced life with unwavering curiosity and gusto. Determined to test her abilities…
BlueRock Photoreceptor Replacement Therapy Moving into a Clinical Trial
The development of gene therapies for inherited retinal diseases (IRDs) took off when young adults and children showed significant vision…
Hope in Focus Attends Foundation Fighting Blindness Retinal Therapeutics Innovation Summit and Association for Research in Vision and Ophthalmology Annual Meeting
Hope in Focus Director of Outreach and Development Courtney Coates attended the Retinal Therapeutics Innovation Summit on May 2, 2025,…
A New Chapter: Reflections on Seven Years of Hope and Inspiration
Angélica Bretón Morán, a 29-year-old musician and educator from Mexico, was born with Leber congenital amaurosis (LCA) due to RPGRIP1…
Life Through a Different Lens: They Just Talked About Eyes!
Christine and Anthony Gonzales dreamed of having a large family and were thrilled when their first child, Iliana, was born…
Théa Forms Sepul Bio to Advance RNA Therapies for LCA10 and USH2A into Clinical Trials
In December 2023, ProQR sold its sepofarsen (LCA10) and ultevursen (USH2A) programs to Théa, a large European biotechnology company focused…
LCA Research Updates from FFB
BlueRock Photoreceptor Replacement Therapy Moving into a Clinical Trial
The development of gene therapies for inherited retinal diseases (IRDs) took off when young adults and children showed significant vision improvements in an early clinical trial.
Foundation Fighting Blindness and CheckedUp® Partner to Educate Retinal-Disease Patients About Research, Resources, and Emerging Therapies During Doctor Visits
The Foundation Fighting Blindness (the Foundation) and CheckedUp have formed a collaborative partnership to deliver patient-friendly diagnostic and disease-management information to people with retinal diseases such as age-related macular degeneration, retinitis pigmentosa, and Stargardt disease during their visits to eye doctors.
A Retinal Research Nonprofit Paves the Way for Commercializing Gene Therapies
AN EMERGING, vision-restoring gene therapy for a devastating retinal disease is poised for Food and Drug Administration (FDA) approval. If it gets the regulatory nod, it will be the first gene therapy to receive FDA approval for the eye or an inherited condition.
Get the latest news & updates!
Sign up to receive our monthly e-news publication, and/or our printed newsletter, Seeing Hope, which we mail 3 to 4 times a year directly to your mailbox, no matter where you live.