Hope in Focus | Part-time | Remote

Hope in Focus is a 501(c)(3) rare disease advocacy organization supporting a global community of individuals and families living with Leber congenital amaurosis (LCA), a rare inherited retinal disease that causes blindness or severe low vision from birth.

We are a small, nimble team based in southeastern Connecticut, working primarily remotely, with occasional in-person participation (approximately 5–6 events or meetings per year).

Who We Are

Hope in Focus sits at the intersection of advocacy and science. We center the lived experiences of the LCA and inherited retinal disease community while translating complex research into meaningful, accessible information. Our work bridges the gap between the people who inform the science and the science that transforms lives.

What We’re Looking For

We are seeking an experienced editor to review written work produced by Hope in Focus staff for various publications. The Editor will collaborate closely with the Hope in Focus team and serve as a friendly, informed, and trustworthy voice for the LCA community—reflecting hope, optimism, and care in all communications.

Key Responsibilities

• Review written content for clarity, accuracy, grammar, and tone
  
• Ensure messaging is consistent with organizational voice and brand
  
• Edit for structure, flow, and readability
  
• Fact-check information and verify sources when needed
  
• Prepare and format content for publication across digital and print platforms
  
• Manage revisions, deadlines, and editorial workflows
  

Qualifications

• Proven editing experience, preferably in nonprofit, healthcare, or science-related settings
  
• Degree in communications, journalism, English, or a related field
  
• Strong organizational skills and ability to meet deadlines
  
• Comfortable working independently and collaboratively in a small team
  
• Expertise with AP style
  
• Proficiency with Google Workspace
  
• Excellent interpersonal and interviewing skills
  

Ideal Candidate

• Mission-driven and eager to learn about rare disease advocacy
  
• Curious, thoughtful, and detail-oriented
  
• Empathetic and comfortable speaking with people from diverse backgrounds
  
• Committed to diversity, equity, access, and inclusion
  
• Passionate about storytelling and clear communication

Compensation

This is a part-time, contract position. Compensation is provided on an hourly basis of $50/hour.

Hope in Focus is open to discussing alternate compensation structures (e.g., hourly or monthly retainers) with qualified candidates.

Email courtney@hopeinfocus.org with your resume to apply.