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    • About
      • Our Story
      • Our Vision/Mission
      • Our Team
      • Hope in Focus Ambassadors
      • Pressroom
    • Living with LCA
      • What is LCA?
      • ID Your Gene
      • Clinical Trials
      • Family Connections
    • Community
      • Community News
      • Resources
      • Rare Retinal Disease Glossary
    • Events
      • LCA Conference 2025
      • Dinner in the Dark
      • Photo Gallery
    • Contact
      • Get in Touch
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    Tag Archives for: "rare disease"
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    By Eissa Bass
    In News
    Posted April 25, 2018

    SSH Supports RARE Act 2018

    Sofia Sees Hope has joined with dozens of other organizations representing the 30 million men, women, and children living in the United States with rare disease, to support the Rare Disease […]

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