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    Archives

    Monthly Archive for: "April, 2021"
    0
    By Rosanne Smyle
    In Blog
    Posted April 29, 2021

    Let’s Chat About … Why Natural History and Patient Outcome Studies Matter

    Amid the intricacies of researching treatments and cures for rare diseases, such as Leber congenital amaurosis (LCA) and other inherited retinal diseases (IRDs), the patient remains the major [...]

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     Sofia Sees Hope Scavenger Hunt
    0
    By Eissa Bass
    In Blog
    Posted April 29, 2021

    Sofia Sees Hope Scavenger Hunt

    Welcome to the Sofia Sees Hope Scavenger Hunt! We are glad to meet you. We are doing this to continue to raise awareness for rare inherited retinal disease and Leber […]

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    0
    By Rosanne Smyle
    In Blog
    Posted April 27, 2021

    Let’s Chat About … Genetics and Inherited Retinal Disease

    You or your loved one just received a clinical diagnosis of Leber congenital amaurosis (LCA), a rare inherited retinal disorder caused by a mutated gene. The disease causes severe vision […]

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    0
    By Rosanne Smyle
    In Blog
    Posted April 9, 2021

    ‘Give Us Hope’: Bringing Together Leber Congenital Amaurosis Researchers and Patients

    Promising gene therapy research – characterized as having a good potential to restore vision – is underway to help visual impairment caused by a form of Leber congenital amaurosis (LCA) […]

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