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Allison Galloway feels cautiously excited about a new genetics company prioritizing research into her children’s form of Leber congenital amaurosis known as LCA13 (RDH12).  “I would say I’m [...]

The big news just keeps coming: fresh off the rebranding from Sofia Sees Hope to Hope in Focus, we are pleased to announce a pledge to raise $300,000 by 2025 to fund LCA treatments and research.  [...]

Parvi Gaddam has endured a lot for a little girl genetically diagnosed at 6 months’ old with a form of Leber congenital amaurosis called LCA3 (SPATA7). Like most parents discovering their child [...]