Archives

Brandon Biggs is the chief financial officer with his mother Sonja in their company, he conducts accessibility research and he helps businesses make their software content more accessible to the [...]

Preschooler Vittoria shrieks with delight as she bounds down the cobblestone way, toward the big statue of the angel riding a chariot. Later we see the almost-4-year-old, nicknamed Vicky, tossing [...]

Tami Morehouse made research history in the Leber congenital amaurosis world, and in the nation, when at age 44 she became the oldest person in a successful LCA-RPE65 genetic therapy […]

  Annie Cohane takes singing lessons and piano lessons, she runs track, she’s working on swimming, and she’s a second-grader at an elementary school in Norwell, Mass. She’s 8 years […]

Our fourth annual Dinner in the Dark event broke all our past records: most attendees, most money raised, and most fun ever. More than 370 guests attended Dinner in the […]

Sofia Sees Hope Co-Founder Laura Manfre will help provide the LCA community’s perspective to a Food & Drug Administration panel Thursday about a proposed genetic therapy for Leber congenital [...]

Doctors diagnosed Jack McCormick in high school with Leber congenital amaurosis due to mutations in the RPE65 gene. With a mix of feelings about his diagnosis, it was when he […]

Sofia Sees Hope is the recipient of paperback and Kindle proceeds through October from “The Bug in Our Brain,” a new self-help book by Robert Christiansen, a friend and longtime […]

To help expand our resources to the Leber congenital amaurosis community, Sofia Sees Hope has joined the RARE Foundation Alliance of Global Genes. The RARE Foundation Alliance is a coalition of [...]

Last week Sofia Sees Hope signed on to a letter to Congress urging it to keep in place the Orphan Drug Tax Credit, which allows drug manufacturers to claim a […]