After Luxturna™ Treatment: ‘Mom, Pop, is that you sitting there?’
Christian Guardino underwent experimental eye surgery five years ago with a revolutionary genetic treatment called LUXTURNA™, forever changing his life by restoring...
Family Stories
Living Without LCA: ‘Andddddd we’re off”
“Andddddd we’re off 💓,” Sarah St. Pierre Pettit wrote Saturday afternoon as she, her son, Creed, and her fiancée, Chad, piled...
Misty Lovelace: ‘I Can See Little Things’
Told at age 12 she would be blind by 18 because of her Leber congenital amaurosis, Misty Lovelace of Kentucky...
Ready, Set, Scheduled. Florida Boy Will Receive Gene Therapy Treatment to Reverse Vision Loss
This is the second in a series following the progress of Creed Pettit, a 9-year-old Florida third-grader, who completed treatment...
‘We know how important it is to know your gene. We’ve lived it.’
It took more than seven years to get a genetic diagnosis for our daughter. During that time, doctors were pretty...
Living with LCA: ‘Then All Our Dreams Were Realized’
Hannah Reif, 7, will be treated with LUXTURNA™ at Children’s Hospital of Philadelphia (CHOP) to cure her blindness caused by...
Curing Blindness: The Road To Treatment With LUXTURNA™
This is the first in a series following the progress of Creed Pettit, a 9-year-old Florida third-grader, who is a...
Being Married to Brandon: “A Precious Exercise of Mindfulness”
When I met Brandon in September 2014, I thought that I was talking to the most interesting person I had...
Atom Biggs: ‘The Greatest Adventure of My Life”
Raising a blind son has been one of the most exciting and inspiring experiences a dad can ever have. I’d...
Sonja Biggs: “My Normal and His Normal Are Just Different”
Brandon Biggs is the chief financial officer with his mother Sonja in their company, he conducts accessibility research and he...