Family Stories

Brandon Biggs was diagnosed with vision loss — and ultimately with Leber congenital amaurosis (LCA) — as a toddler. His genetic mutation...

Preschooler Vittoria shrieks with delight as she bounds down the cobblestone way, toward the big statue of the angel riding...

Tami Morehouse made research history in the Leber congenital amaurosis world, and in the nation, when at age 44 she...

Parents want nothing but the best for their children. This is why I am so often asked questions like, “I...

Somehow I made it through 37 years of life without ever meeting a blind person. Then my 3-year-old son was...

Annie Cohane takes singing lessons and piano lessons, she runs track, she’s working on swimming, and she’s a second-grader at...

Doctors diagnosed Jack McCormick in high school with Leber congenital amaurosis due to mutations in the RPE65 gene. With a mix of feelings...

Simon Wheatcroft held his audience spellbound at the Global Genes conference in California where he detailed his journey from losing...

Enzo was born in 2014 in Lausanne, Switzerland, with a clubfoot. He immediately received physical therapy, then a plaster cast...

Trust me when I tell you to grab a tissue. Or roll down your sleeves and get ready to wipe....